Monday, July 30, 2007

Monday Evening, July 30th

It started many weeks ago, praying for a miracle and Friday at noon our little miracle check out of the hospital to begin life anew. A new birth a new, a new day, a new life awaiting her as she is wheeled out to the car and back to her home where we are all awaiting to begin our lives together. There will be many days of therapy and healing and we are so glad God has given us the opportunity to walk through this journey. As wierd as it seems I am sure we will miss these days and having all of this time together. We will miss the nurses who have cared for her and the doctors who saved her. I will miss the pastors I have come to know. I will certainly miss the other patients and their parents and the feeling of bonding with people on a truly pure level.

It will be great to go home and yes the blog will probably continue forever.

Love you all
Allie's Dad

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Sunday, July 29, 2007

Sunday Afternoon, July 29th

Early post today. Some good, some not so good, some great. I'll tell you after this is over I'm going to Disney World and I'm never going to complain about not having a day off.

Allie was sniiiiipy this morning and even though I tried a few times to leave and come back I think she was tired and just wanted to be left alone so Naancy, Matt and i went out to lunch and came back a few hours later to new and imroved Allie. When we got back we rounded the corner and the was Allie with a whole new audience watching her Millie video. She is a hoot. She used to watch the same video over and over to learn it but she has taken it to a whole new level. It is so cute to see her from afar interacting with people. She is now dressing herself in her jeans, t-shirts and sweatshirt, with her short hair and beautiful smile she is radiant - looks alot like Demi Moore in Ghost. Every time I see her from a distance like that I just fall in love with her again and again. You know everything is going to be OK.

Allie has never been a touch feely person and never liked to be hugged or held close and that is something that is so hard because you just want to hug her and let her know that everything is going to be OK and that part really saddend me because you love something so much but you can not hold it. Boo hoo - poor me. Really though that is a very sad part for me but it is how Allie has always been.

We all watched the Millie video again and Allie was sweet as pie. Her memory is coming back more and more each day as are her skills, motor and mental. She was just playing checkers with Isaac a young fellow who has basically the same injury as allie but not to the same extent. Allie has always liked working and playing with younger kids and those two bring this place to life. Right now Robin, one of the greatest nurses has taken Allie and Issac down to the gift show for a little outing and that is such a great thing for them. I love when the nurses are proactive and interact with the paitients like that.

We brought Allie a big chocolate bar this weekend that some of our good friends the Metzgers gave us to give to her and it was really alot of fun to see everyones face light up when we came in with a 5 pound Hershey bar. Let's just say there was some candy eating going on. Allis still has a HUGE piece in her room and I know she is excited about that.

Matt and I have to go up the hill tonight but we'll be back tomorrow. I really like going back to work. I love my office and my patients (family members) and I love what I do.

Tomorrow is the big meeting when we will discuss the day Allie goes home, probably Friday morning or before. I have a lot of work to do at home with alarming the doors and windows. We have to keep the little girl safe. Don't want her to get lost.

Anyhow I have a feeling that this week is the true come back for everything. We begin rebuilding our practice to the powerhouse it once was and we begin living as a FAMILY AGAIN. I know the journey is taking on a new face and I am looking forward to it. No Fear - No Doubt, just gratitude and appreciation for everyone who has made this possible. Believe it or not you have not only saved her life but ours.

So to everyone - Good Night.

Love Ya'll
Allie's Dad

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Saturday, July 28, 2007

Saturday Evening, July 28th

Well for those of you who thought our trip to Brevard would turn out horrible, you were wrong. Sorry, just had to throw you off there for a minute. It was teriffic!!! Wasn't so sure it was going to go well when I got tot he hospital this morning as Allie was a little out of sorts. Big day on Friday so the next day she is usually tired. We considered holding our trip off until Sunday as it was raining out and you know but.... we decided to give it a whirl. We are going to have to learn to handle these situations so there was no better time than the present. But let's back up a minute.

Allie had speech therapy at 9:00 this morning so I got her at 8:30 just to make sure she was up and ready and much to my suprise she was already up, showered, dressed and sitting in the rec room with two other people watching - what else - the Millie video. Every person on the 3rd floor at the Roger C Peace center is a huge fan of Allie's. Her new (temporary) speech therapist Denise (who is awesome) took Allie for breakfast since our girl did not like what arrived (and for good reason), so they went downstairs. Denise and Allie have great rappore and I always enjoy hearing from her how well their session went. Well after awhile of sitting upstairs I decided to do down and get some breakfast myself being careful not to let them see me - but I saw them and it brought tears to my eyes. There they were in middle of the atrium eating their breakfast and just chatting like two girlfriend who had not seen each other in a while. A very normal, perfect picture. For a moment all was right in the world as if nothing had ever happened.

After her therapy we got in the car and drove up the mountain to our home. No problems on the ride - in fact it was a joy with some singing and game playing. At home - picture perfect, a few moments to acclimate to the dogs and just like it has always been - was this a dream - was there ever an accident. Of course there was but I have these moments when. I cooked up a big Sunday lunch (on Saturday) and we all ate at the table and talked for an hour and a half. Wow this was amazing and if this was a sign of things to come, well we were going to be OK. After a while Allie wanted to go downtown abd I agreed even though she was beginning to show signs of being real tired. We all got in the truck and all hell broke loose so we headed back down the hill to the hospital and hour away with her crying and screaming that she was hurting and needed an ambulance to take her. Brain injury -WILL NOT distract from our most amazing day.

As soon as we got to the hospital she calmed down, we went upstairs and it was if it never happened - again, brain injury. All is well and life is good. We are going to be fine and Allie is going to make a Full Recovery. She is real tired now and in the shower again. Nancy and Matt went to the movies so I guess I will try to catch up with them.

Peace and Love
Allie's Dad

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Friday, July 27, 2007

Friday Evening, July 27th

Music is the soul of Allie and today her soul has been reborn as she rediscovered her voice and the love of music that helps her breathe.

After saying she will never go to college because she could no longer sing (and tearing my heart apart in the process) the day turned into one of the best days ever - a true defining moment and breakthrough in her healing process bringing Allie to a new level of recovery - one we had been quietly hoping for and one that will propel her back to being our Allie.

After this mornings blog things were really going well and the whole family was together just having fun being together - really no meanness just having a good time. Matt is so good with Allie, they are such good friends and he handles her so well. I am truly proud to say that he is my son. He is one of the nicest, kindest, soft spoken people I have ever known. He has a great sense of humor but more importantly a gentle spirituality which allows him to transcend the hospital setting and allows him to just be pure love for his sister. He reads alot on Zen and follows what he reads - he is calm, gentle breeze in the storm of trauma.

We had a GREAT lunch together in the rec room with a few other patients and just laughed the whole time until it was off to another therapy session for Allie. During her occupational therapy sessions the last two days Allie and Shannon worked on writing thank you notes and we were all totally blown away by the way she writes now and puts together thoughs and sentences. As good as you or I would. The Lord is good to us - Thak You. All she had to go by were the addresses on the envelopes and she put together the names and the appropriate thanks ie: family member vs. friend. It will be impossible for everyone to get a personalized thank you but I am hoping that in the end - if possible - each of you will be thanked correctly.

While Allie was in therapy Nancy, Matt and I ran out into town to ahve lunch at a new Indian Restaurant - Good. On the way back Allie's voice coach and earth angel (Ginger) called to let us know she was with Allie so we decided to let them be alone for a visit. Allie loves and respects Ginger and visa versa - Ginger knows how to get Allie going and they had the best visit. Ginger was so excited - Allie told her it hurt her to sing so Ginger just told her to hum the songs which she did and eventually started to sing - LOUD. Allie was so excited when we got back.

Well after a quick shower (#4 of the day) we were off to go see Hairspay, a movie Allie adores. She had seen the origional with Ricky Lake and has also seen it on Broadway. This was going to go one of two ways but since everyday is a great day for a breakthrough - this was going to be one. On the way to the movies Allie asked to listen to Matt's IPOD something she had not shown any interest in and once she put the earplus in that was it - the heavens opened up and her soul was rekindled - without saying a word we knew Allie was now walking on high ground and her true healing was happening MUSIC - what Allie lives for was once again flowing through her viens. Out of nowhere she was singing and knowing all of the words to the songs and the names of the artists and not just one song -every song and she was asking us, do you want to hear me sing this one and on and on all the way to the movies. Nancy and I just sat in the front seat looking at each, thanking God, crying and sayig yes, yes, yes, please sing another one to which she happily did.

Inside the movie it happened again. Allie sat through the whole movie paying attention and singing along quietly to every song in the movie. She knew the lines - she knew the songs and she had the feeling. It was great to see that at the end of the movie, Allie was crying. She is very sensative to things that are good and she was so happy that in the end the lead girl got to dance on tv, got the boy of her dreams and that black people were able to intergrate with white on tv. I loved to see her emotion.

After the movie we went to the Ronald M cDonald house to get Allie her Ipod. Yahoo, she wants her music. We had a great dinner there and are now back at the rehab. Nancy went back to the house because she wanted to ride out the high without running the risk of Allie getting tired and snapping at her. God Bless her - she deserves to ride this high for a long, long time as do we all - yes you all included.

I could write all night about emotions and healing but Allie wants me to go watch her sing in the Millie video so I am off to be with her. Today makes it all well. God said he would never leave us or foresake us and we held firm to that and alway will.

God bless you all
Allie's Dad

WE LOVE YOU GUYS - TOMORROW WE TRY BREVARD!

9 comments:

Friday Morning, July 27th

Good Morning

UNbelieveable, this is our 100th post. As it is every day, today starts with a day of refelection and gratitude - where we were, where we are and where we are going to be. As it is every day my heart is filled with gladness, sadness and anxiety. Aware of the past unsure of the future but positive of the outcome. FULL RECOVERY - NEVER A DOUBT.

With trepidation we will be taking Allie home tomorrow for a visit to reaquaint her with her towm, home, friends and most of all her dog Sammy. Should be quite an adventure. We will probably leave after breakfast and try to make it a day. Pray for us.

Right now her schedule of therapies has been cut down and she is really doing better and better every day - The miracle girl is making great strides in her recovery. She continues to amaze me with her strength and ability. I just can't wait until some of the verbal meanness calms down, she is just so confused. Brain injuries.

After therapy today Allie wants to go see the movie Hairspray so if she is still in the mood, that is what we will do. It is a moment to moment thing

Yesterday was an emotional day, somedays you just get so sad to see your child in such a state where she really does not know what is going on around her and to just think that she lives in the hospital and to see her there tears you up. This morning she told me that she was not going to go to college anymore because they took her brain our and she could not sing or dance anymore because it hurts so why should she go and waste money.

No matter how bad or emotional it gets your faith is always renewed by the great people of the world who call and write or stop by and visit and lift your spirits. From complete strangers to good friends not a day goes by where people don't help us survive.

Allie and I went downstairs before becasue she does not like the breakfast they send her (fruit plate, bagel and yogurt). Just an example she wants subway, then not she wants starbucks, no, cafeteria, then subay, starbucks, cafeteria, subway, cafeteria, starbucks .........

Anyhow enough about us - how are you guys doing? Let us know

We love you all
Allie's Dad

6 comments:

Thursday, July 26, 2007

Thursday Morning, July 26th

Well here I am again with a morning blog. Still can't seem to beat Matt to the computer and have to wait until I get to work in the morning.

Really nothing new to report today so maybe I will have more for you later when I get down there. Nancy did say that she had a long meeting with the psycologist yeaterday trying to work out the details of getting her home ie: outpatient therapies vs. having someone come to the home for the first few weeks. We are also deciding which therapies would benefit her the most at this time. Most definitely speech and occupational, we are still deciding on physical and recreational. There is also the anger - which is really not anger but for lack of ba better word let's say anger issue. Brain injuries are perplexing she can get real ugly with you one moment and then a few minutes later when you ask her about it she says she can not remember doing it nor is she angry. Just gotta learn how to mamage it and keep your personal feelings and emotions out of it.

Well I have patients waiting so I'm off. Check out the pic of Allie plaing checkers - what a miraculous step. Thnak you God and all of the prayer warriors still going strong for us.

Love and Recovery
Allie's Dad

2 comments:

Wednesday, July 25, 2007

Wednesday Morning, July 25th

Good Morning

With Matt home I seem to be running a day behind with everything, he is great and it is wonderful to have him home but in the evenings when we get home from the hospital he seems to beat me to the computer every time. Teenagers are quick. Anyhow here's the Tuesday review.

After about 18 hours in bed I seemed to have beaten the food poisioning and Matt and I went down to see Allie bright and early in the morning. She didn;t have any therapies until 11:00 so I knew we would have some good time to hang out in the morning. The best I can say is we had time. Poor little sweetie was glad to see us at first and then -click - something set her off and she wanted me to go. It's interesting trying to figure what sets her off but at times I feel like she is trying to play or tease but due to the injury does not know that her words are inapporpriate and it's sometimes hard to watch because you can see that she obviously does not understand or want to do what she is doing but it's almost like she realizes it is not correct but does not understand how it's incorrect or why we do not like that behavior. I was firm with my voice a few times yesterday when I would tell he I did not like the way she was talking to me or her mom and she seemed to respond to that, also ignoring her when she is like that after you tell her you will not speak to her if she continues to talk like that seems to work. Poor sweetie, she will get better - for she knows not what she says.

Afternoon not much better but Nancy got back safely and looks great after a few days off. Allie and Matt bond really well together and one of the coolest parts of yesterday was Allie asked Matt to play a game of checkers with her,. so they set up the board in the rec. room. I was amazing to see them sitting together laughing and actually playing checkers and understanding the game and playing it all of her life. She was not up to her normal great game but played well and was not slow in thought or movement. I will post a picture of them later.

We are getting to the crucial moment when we have to decide our next step. In the next day or two we have to decide wether Allie comes home or goes to a different facility. Nancy and I are both leaning towards coming home and doing out patient rehab. If things do not go well we always have the option of the inpatient - It's in Gods hands and we will wait and see.

Have to run off to work now, so I wish you all a blessed day.

In health and recovery
Allie's Dad

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