Friday, August 31, 2007

Friday Evening, August 31st

To finish up from the blog before.

Anyhow the shots were not going to happen and the nurse was in there to see Allie's reaction. So we told the charge doctor that we were not going this route and that he woudl ahev to find another way. Well they are all pissed off at me and think I am the most non-compliant trouble maker ever to grace the hallowed halls of Greenville Memorial hospital. Anyway Dr. Big comes in later and tells us that is is the shots in the stomach twice a day even though there is no sign of stroke or cumadin but that the levels would not get high enough and on and on. Well while he is talking Nancy goes into the hallway to make a call and then comes back in adn when I ask her her opinion she says she would like to speak to me in the hallway for a moment, well this sends Big into a tizzy and like a prissy little school girl he stand up and says Don't do this to me and I will not stand for this and storms off with his minions in tow saying when you've made a decision, come find me - real pro eh? We decided we will go the sapirin route. Come on, how many of you could hold your 17 year old daughters down and have them let you inject them in the stomach with a medicine that burn as it goes in twice a day much less having a daughter with a brain injury. Let's get real, another brilliant moment like the 24 hour eeg.

Well they all went away and Allie and I had a grand old time playing pool and foosball and cards until she had yet another MRI to see if thing have gotten worse and one of the neurologists just reported in that it had and that he saw no option but to do this Lumbar Puncture (spinal tap), well we talk for a while and basically he said it is to determine if she has a viral infection, bacterial infection or nothing at all. and I ask what he would do either way full well know if it ws viral - nothing, bacterial, antibiotic and nothing, well? nothing and he agreed. So is it would it, now I'm between a rock and a hard place, I am sure it will come back negative and even asked him how he could think infection especially since she has not had any fever the entire time and he just shrugged. We have go through everything else so I asked Allie what she thought and she calmly said, whatever is best for me so they have beat me into submission, I will hate myself for doing it or I may hate myself for not doing it but basically I hate myself for being in this situation and not trusting who I am or what I believe in. Forgive me.

Anyhow my anxiety level is off the charts but please let me say, you are only reading my thoughts. Many people have questioned my faith or how I was doing recently and I really am doing fine, I am just stuck in a situation I do not agree with and I am doing things I don;t believe in andI am having a hard time with it - I will be OK and I am OK, so let's just all get through this and get our little girl home.

Peace and Love'
Allie's Dad

2 comments:

Friday Morning, August 31st

Hi All

Sorry for missing the day but all went well. Git the report from the radiologist in NY we sent the pictues to and all is well as far as vascular problems or stoke goes and that's great news. They will be taking Allie down for another MRI in a few minutes and then we should be able to go back home today. They wanted her to stay on a blood thinner called Lovax or something like that and I have never been happy about it nor has nancy and amazing alot of the nurses have asked or questioned why they want her on it. This morning I was supposed to give her the shot (in the stomach) but that was not going to happen, she would not allow it

2 comments:

Wednesday, August 29, 2007

Wednesday Evening, August 29th

Today was a great day getting back to work and knowing that Allie was going to have an easy day in the hosiptal. There would be not tests and only one or two shots so it should be faily smooth and I ws not wrong. First for me, I love going to work. I get to spend time with some people I really like and have grown to love and be like family. I get to wear shorts, laugh and help people, I consider it a great honoer to work with the people who come to me everyday. My patients deserve a big thank you from Nancy and I as they have been there for us everystep of the way as we have changed shedules on them ( a few times), and we have had to inconvenience them and they have always been there to love us and hug us and carry us through. Thanks Guys and for everyone else, and to the thousands who have and continue reading the blog. Many of you are silent but we know you are there praying and cheering us on.

We are more confident tah ever that Allie is now going to recover at even a faster pace. Now that we are able to adjust we have also begun changing her diet by getting her back on Juice Plus in the hospital and by bringing her in fresh food and juices. Thanks a billion to our dear friend Kimmi Oddo and her whole family who run the Inn on Main in Brevard, NC for catering Allie's dinner tonight. They are not only great friends, they are Allie's great friend (and boss'). The Quiche and Kimmi sauce was eatin here her tonight - each bite with a big smile!

My sister Roni joined me on my trip to the hospital after work tonight and that was a real treat getting to spen some time with her; probably the most since her trip her due to the current situation. When we got there Allie looked great and was so happy to she us she satood up and great a big round of hugs to all of us. What an awesome greeting. Of course Nancy's was awesome awesome also and quite reconnecting after being apart for the day. Allie told us about her day and they had dinner. After that is was a game of foosball with all of us laughing and then we all played rummy and Aliie won the first hand - truly won. At no time ws she upset or complaining, her spirits were good and her with was quick.

Thanks to everyone who has sent information, articles and books (thanks dad), you have moved us with all of the information. We have made calls, sent films to other doctors and sponken to master herbalists who we will seek care with once we leave.

So here's the really great part of the day - All of Allie's cat scans and angio cat scans have come back negative for any blood leaks or hemmoraghes and no vascular disorders or stenosis. Now that's great news. The doctors still want her to stay on this heavy blood thinner but we will talk. We know these guys really do want the best for Allie but it has been a very difficult road with many tests and few answers. We are looking forward to getting her home and that comes with a lot of uneasiness but we can not leave her there for ever.

Anyhow, great day, great news still a long way to go but we are all ready to do it. Giove my regards to broadway.

Allie's dad

4 comments:

Tuesday, August 28, 2007

Tuesday Afternoon, August 28th

Thank you so much for all of you love and concern. We are in a calm sense of right as we have have once again been able to clear out thoughts and our hearts and recomitted Allie's care to to love and protection of God and have taken back our believfs in natural healthcare. Since letting God we have been filled again with the spirit and the calm and doors have begun swinging wide open and not hospital doors but universal ones.

Earlier in the day i visited the chapel as is my custom to pray and put in a prayer request for Allie and in my prayer I asked for a personal favor as I have been taught you can do and that is when i was once again filled with the light. Upon returning to Allie's room she looked up at me and said Dad, I'm OK and she shook me to the core. I forgot to mention that earlier in the day she looked up at me and said Dad, pray for me today. She has asked this of me twice in the last two days. Once in the room I did some energy work on her and then adjusted her cervical spine and she immediatley relaxed. This has been only the second time I have been able to manually adjust her and she moved unbelieveably. Her face immediately cleared and we went for a walk.

Sometime when you are caught up looking for answers whe have to remeber the incredible healing power of the body. How long has the subluxation been interfering with her nerve flow and could that ahev caused seizures. OF COURSE and could it have interrupled with the blood flow causing vascular problems - OF Course. I am so glad she let me pray for her and them adjust and lay hands on her. Removing the nerve pressure is what we do and now that we are able to touch her, she is once again on her way to Full recovery - only quicker. Of course we will still send the fils out to be read and take every precaution but we all know deep down who does the healing - and who has the power. If we can put her little frame back in place and allow the God force inside of her to work again - Broadway here we come.

Your research and letter mean so much to Nancy and I - thank you, thank you, thank you. Yo can not believe the ministers and spiritual leaders of all faiths that have called us in the last few hours. It's as if the heavens have once again opened up and the angels have spread their wings for Allie to ride on.

Sorry I had to get off so abruptly before but Allie needed me - right then!!!

Full Recovery - never a Doubt
Allie's Dad

5 comments:

Hi everyone,
This is Nancy. I feel like there is someone out there who can help us right now. This is my gut feeling. I don't know who he/she/they may be, however, I know someone has insight to this "obstacle". If you feel something deep down - possibly something/someone comes to you - please contact us asap. Time is of the essence. I am begging for help from friends, family and of course, from our Almighty God. We are struggling and need your help. Please whatever anyone can do, we are open to receive. God bless you all for your continued love and support. With love and gratitude.

3 comments:

Tuesday Morning, August 28th

Sorry for not blogging yesterday, I am sure alot of you are wondering what is going on. First of all, yesterday I was so tired and frustrated that I thought it best universally to hold my tongue until I could mediate and pray somemore and I would like to take this opportunity for letting my emotions get the better of me in past blogs. I know that truly the only things I have control over are my attitude and my emotions and both need to be extremely positive inside and out unfortunately right now it is only outside and that I am having a hard time with.

I am just very frustrated and not sure we are in the right hospital for Allie so we have begun looking for others. It is just that once again we seem to be chasing down the rabbit hole and no one is able to say with any degree of certainty what is going on. They all guess and speculate but no one is willing to go out on a line and they just double talk you to death so you can never come back and say well Dr. So and So said this because in all actaulity like I told one yesterday, I hear a lot of words coming out of your mouth but you are not saying anything. Everyone is looking for deniability so you can never come back to them. Then they do an angio-Cat scan and use the older machine so they do not get the best pictures and it just seem like one foul up after another. Just don;t feel comfortable and for as positive as I normally am I just think we gotta go.

4 comments:

Sunday, August 26, 2007

Sunday Evening, August 26th

9:10pm and our little darling was so tired she couldn't keep her eyes open for another second. Unfortunately she will have to get a shot shorty which will be a rude awakening but hopefully for only a moment - she has been exhausted ALL day.

So where do we begin today? Who knows but there is good news. It's all kind of wierd to be doing so good fro so long and then a curve ball comes at ya. Well they put Allie on the antiseizure med. the other day and we are prretty sure that she has still been suffering seizures and that should not be because of the medication so what else could it be besides a TIA or mini-stroke with reversable paralysis. It will be OK if we figure it out because it is treatable but if not treated it is a precursor to something bigger - irreversible.

When we got here today they put her back in pediatrics which was OK but we had an uneasy feeling about the pediatric neurologist - probably very good and he did recommend further testing and got her directly admitted today but you know, when something dosen't sit right ot just dosen't so we asked if there were any other pediatric neurologists but to our suprise in the whole system there were no so we asked for an adult neurologist come and see Allie - well they called the one on duty but the guy was the biggest ass8&%^& on the planet and would not come over to the pediatrics unit to see a patient and yelled at the resident that made the call and told them to put a real doctor on. What a jerk!!! So now Allie is without a neurologist for the moment - if one will not come tomorrow, we will ahve to move her to the adult unit - what a bunch of semantics. Those guys won't come here because they feel like they are stepping on the pediatrics guys terratory - screw the patient. What we have to put up with. Anyhow the rest of the doctors and nurses on the floor have been teriffic

Poor Allie once again became the human pin cushion - lots of blood samples (some going to the MAYO clinic to check and see if her blood really coagulates to quickly which may be a problem - to thick) and her veins are so tiny it is extremely difficult to get blood from her. Ouch!

From there it was off for another CAT scan to check for any hemmoraging in the brain of leaking and thank goodness there was none - then back to MRI to a prestroke evaluation to check for any stenosing or narrowing of her arteries which may be the problem. If it is she can just be treated with blood thinners for awhile.

What has happened to my baby - the good news is on the way to the hospital she told me she was a fighter and not a quitter and she wanted to get healthy and go to school and go on Broadway so thank you God for all of the healing you are giving her and thank you all for caing.

Allie's dad

6 comments: