I forgot to add my e-mail address - it is drcagen@citcom.net and my cell phone, should you need to speak with me directly is (828) 553-2139
God Bless
Steve
Wednesday, September 26, 2007
Wednesday Afternoon, September 25
Dear Friends
It is with great sadness that I will no longer be blogging. Apparently the blog is causing Allie to much stress and she is becoming resentful that I am doing it.
This blog means everything to me and to many of you, however it is now work causing Allie or our family the amount of stress it has been.
I can not tell you how much your love, blessing, gifts and well wishes have meant to us. They have pulled us through the darkest days of our lives and have carried us when we could not stand alone.
Full Recovey will become a reality and it is thanks to you so please check that site and pass it along. It will not be long before it is completely done and we are helping people aroung the world. Full Recovery Radio is now a reality and will air Tuesday Evenings at 7:00 eastern time. Just log on to www.blogtalktadio.com to hear the show and a phone number will show up on the screen where you can phone in. So we will be able to talk live and I want to get to know each and every one of you.
Please check back often as Allie may at some time want me to start blogging again, so it is with tears in my eyes and a broken heart that I say goodbye.
God Bless You All. Full Recovery - Never a Doubt!!!!
Allie's Dad
If you would like to join the Full Recovery Mailing list, please e-mail me your e-mail address and I will add you to the group. I hope everyone joins!!!! Again - thank you for being there, let's talk tuesday.
It is with great sadness that I will no longer be blogging. Apparently the blog is causing Allie to much stress and she is becoming resentful that I am doing it.
This blog means everything to me and to many of you, however it is now work causing Allie or our family the amount of stress it has been.
I can not tell you how much your love, blessing, gifts and well wishes have meant to us. They have pulled us through the darkest days of our lives and have carried us when we could not stand alone.
Full Recovey will become a reality and it is thanks to you so please check that site and pass it along. It will not be long before it is completely done and we are helping people aroung the world. Full Recovery Radio is now a reality and will air Tuesday Evenings at 7:00 eastern time. Just log on to www.blogtalktadio.com to hear the show and a phone number will show up on the screen where you can phone in. So we will be able to talk live and I want to get to know each and every one of you.
Please check back often as Allie may at some time want me to start blogging again, so it is with tears in my eyes and a broken heart that I say goodbye.
God Bless You All. Full Recovery - Never a Doubt!!!!
Allie's Dad
If you would like to join the Full Recovery Mailing list, please e-mail me your e-mail address and I will add you to the group. I hope everyone joins!!!! Again - thank you for being there, let's talk tuesday.
Tuesday, September 25, 2007
Tuesday Evening, September 25th
Today was a keeper!! Wow, what an awesome day full of memories that I will keep forever.
Allie and I went to therapy this morning and it was good. I asked Alli's therapist if I could have the first and last few minutes of each session to go over my thoughts with her and to get her feedback on how Allie was doing. One of the things I have discovered along the way is that if you do not ask them, they will not just come out and tell you. This is where Mark Clark at the rehab excelled - he, after knowing how much we wanted to be involved, went out of his way to find us each day and spend time explaining to us what was going on, what his rational was for what he was doing, where he was going with his treatment and what he thought the outcome was going to be. I believe on the website I will add a downloadable card that says just that: 4 questions: and 1 piece of advice.
1. What are you doing
2. What is you rational for doing it
3. Where is this treatment leading us
4. What is your expected outcome
5. Question until you are satisfied
Anyhow I asked her the 4 questions and I was satisfied so that was that. Unfortunately, to many health providers get their dander or insecurities up when you ask them questions but you have every right in fact it is your duty to know everything that is happening so you can make an informed choice .
Well after therapy we headed to the Maggie Valloey, a beautiful mountain community on western Morth Carolina. This place is a throw back in time with nice shops..... We drove to one shop which said the most photographed spot in the mountains so we both got out and went in. It was you typical mountain store with knick-knacks, and jellies and ciders. Seen one, seen 'em all but they had a large metal tower that you could climb up and see the view for the low low price of 50 cents each, so after Allie agreed up we went. Three weeks ago the girl couldn't climg 10 stairs and today she went 83 up and 83 down (I'll add pictures later). What an awesome accomplishment!!! She is doing so good. We just sandg the whole ride up and were happy to be with each other. It is so good for me to hang out with her and it just means so much to me.
After the stair climb we drove down to an amusement park in the mountains called Ghost Town. Now you have to picture that this is a mountain amustment park so everything is on the top of a huge mountain and the only way up is on a chair lift. As Allie would say Oy Guvalta. Anyhow we paiud our fair and off we went on this HUGE chair lift. I'm gonna say it again HUGE chair lift. Well we had a great time going up and Allie really liked it. It took about 15 minutes to get up. When we got off, I had them stop the lift all the way so Allie could get off easily and they happily obliged.
The amusement park was closed but the restaurant and a few other things were open so we played the shooting game ind it was a hoot. I showed Allie how to hold the rifle and off she went. She hit a few targets and we had alot of fun. Then in the gift shop we bought a Wizard of OZ mug. Allie has started collecting coffee mugs with actors and movie themes on them. How fun.
Also on the way up the chair lift they take your picture and ours came out great - it's really funny. Of course I bought it and ofcourse you will get to see it - as soon as I get it scanned. Then it was a beautiful ride down. The sun was shining and the temp. was probably 75 and just georgous. It was the kind of day you never want to end.
Well we were both hungry so we stopped for a little Mexican then 20 minutes of shopping and home we go - piano lessons at 3:30. While shopping we did manage to fine some home made chocolate and bought just a few pieces. We have decided to limit out chocolate intake.
The way home was just as much fun as the way there and we got home in plenty of time. Bob he instructor showed up, they had a great lesson and here we are. Allie and Bob get along just fine.
I'm going to go now. Allie is standing over me right now getting annoyed that I am writing.
Allie and I went to therapy this morning and it was good. I asked Alli's therapist if I could have the first and last few minutes of each session to go over my thoughts with her and to get her feedback on how Allie was doing. One of the things I have discovered along the way is that if you do not ask them, they will not just come out and tell you. This is where Mark Clark at the rehab excelled - he, after knowing how much we wanted to be involved, went out of his way to find us each day and spend time explaining to us what was going on, what his rational was for what he was doing, where he was going with his treatment and what he thought the outcome was going to be. I believe on the website I will add a downloadable card that says just that: 4 questions: and 1 piece of advice.
1. What are you doing
2. What is you rational for doing it
3. Where is this treatment leading us
4. What is your expected outcome
5. Question until you are satisfied
Anyhow I asked her the 4 questions and I was satisfied so that was that. Unfortunately, to many health providers get their dander or insecurities up when you ask them questions but you have every right in fact it is your duty to know everything that is happening so you can make an informed choice .
Well after therapy we headed to the Maggie Valloey, a beautiful mountain community on western Morth Carolina. This place is a throw back in time with nice shops..... We drove to one shop which said the most photographed spot in the mountains so we both got out and went in. It was you typical mountain store with knick-knacks, and jellies and ciders. Seen one, seen 'em all but they had a large metal tower that you could climb up and see the view for the low low price of 50 cents each, so after Allie agreed up we went. Three weeks ago the girl couldn't climg 10 stairs and today she went 83 up and 83 down (I'll add pictures later). What an awesome accomplishment!!! She is doing so good. We just sandg the whole ride up and were happy to be with each other. It is so good for me to hang out with her and it just means so much to me.
After the stair climb we drove down to an amusement park in the mountains called Ghost Town. Now you have to picture that this is a mountain amustment park so everything is on the top of a huge mountain and the only way up is on a chair lift. As Allie would say Oy Guvalta. Anyhow we paiud our fair and off we went on this HUGE chair lift. I'm gonna say it again HUGE chair lift. Well we had a great time going up and Allie really liked it. It took about 15 minutes to get up. When we got off, I had them stop the lift all the way so Allie could get off easily and they happily obliged.
The amusement park was closed but the restaurant and a few other things were open so we played the shooting game ind it was a hoot. I showed Allie how to hold the rifle and off she went. She hit a few targets and we had alot of fun. Then in the gift shop we bought a Wizard of OZ mug. Allie has started collecting coffee mugs with actors and movie themes on them. How fun.
Also on the way up the chair lift they take your picture and ours came out great - it's really funny. Of course I bought it and ofcourse you will get to see it - as soon as I get it scanned. Then it was a beautiful ride down. The sun was shining and the temp. was probably 75 and just georgous. It was the kind of day you never want to end.
Well we were both hungry so we stopped for a little Mexican then 20 minutes of shopping and home we go - piano lessons at 3:30. While shopping we did manage to fine some home made chocolate and bought just a few pieces. We have decided to limit out chocolate intake.
The way home was just as much fun as the way there and we got home in plenty of time. Bob he instructor showed up, they had a great lesson and here we are. Allie and Bob get along just fine.
I'm going to go now. Allie is standing over me right now getting annoyed that I am writing.
Tuesday Morning, September 25th
I am going to start today's blog by asking everyone to pray for our friend Rachel Juliano that her recovery is a speedy one and that God will bless her and her family with a love and healing. That he will calm their hearts and help ease their pain. For personal reasons, they have chosen to close their blog site and all of our hearts go out to them. As many of you have been following her progress, I will update you as I am updated on her condition.
Yesterday was fun and different. I worked until 9 am and then Nancy came in and took over and I took Allie to therapy. After therapy Nancy called me and told me she would like tot work the rest of the day and for me to just take off with Allie. How fun. We drove around through the Biltmore village, then picked up Matt, came home, cooked dinenr and did her homework. She did really well staying focused for a while but then got a little frustrated or tired and we put it away. I will be having a talk with the therapist today because I don;t understand why she is giving Allie the work she is giving her and it's HARD I tried it for 45 minutes and couldn't get it, then Matt tried it and couldn't get it, so how is Allie going to get it? Iknow there is a reason, I just have to find it out.
We will be off to therapy in a few minutes and then off for a day of hanging out. I saw Allie had developed a rash on her feet and Nancy spoke to the neurologist who assurred her that was OK and only to worry if it was on the trunk of her body,
Have a great day
Allie's Dad
Yesterday was fun and different. I worked until 9 am and then Nancy came in and took over and I took Allie to therapy. After therapy Nancy called me and told me she would like tot work the rest of the day and for me to just take off with Allie. How fun. We drove around through the Biltmore village, then picked up Matt, came home, cooked dinenr and did her homework. She did really well staying focused for a while but then got a little frustrated or tired and we put it away. I will be having a talk with the therapist today because I don;t understand why she is giving Allie the work she is giving her and it's HARD I tried it for 45 minutes and couldn't get it, then Matt tried it and couldn't get it, so how is Allie going to get it? Iknow there is a reason, I just have to find it out.
We will be off to therapy in a few minutes and then off for a day of hanging out. I saw Allie had developed a rash on her feet and Nancy spoke to the neurologist who assurred her that was OK and only to worry if it was on the trunk of her body,
Have a great day
Allie's Dad
Monday, September 24, 2007
Monday Morning, September 24th
It always flips me out when I see the date and realize that we are at the end of another month.
Good Morning Everyone
Good weekend, all was well and even better than that. Sat. was quite uneventful with me taking Matt to the motorcycle show and Nancy taking ALlie to the movies. All in all a very quiet day with no highs and no lows.
Sunday was also a good day. I seemed that Allie once again became more awaye on Sunday. I took her to get cranial work done as I do every Sunday and it seems to be helping her in many ways but each time she gets off of the table she seems more centered, calmer and I don;t know how to say it but closer to Allie. After her session we went to lunch and then drove 40 minutes and walked down the old time Main Street of Hendersonville, NC.
Spent alot of time playing cards. The memory game where you turn matching sets of cards face down on a table and themeach person turns over two at a time and the idea is to rember where the cards are so you can match up the pairs. She is dowing that well which is a great improvement to her short term memory. Also playing a lot of pool.
Had lunch with the flylady on Friday and she is helping me get the radio show off of the ground. It will be Tuesday evenings from 7-8 pm eastern time. I'll get back with more details tonight but it will begin Oct 2nd and you will be able to listen to it over the internet.
Allie is having a hard time with Matt right now. Seems she transfers her picking on to different people and right now it's Matt. Kind of hard for a 15 year old boy to not snipe back and in most cases he dosen't - but sometimes (who wouldn't) but I am very proud of both of them and it's kind of refreshing to see some sibling bickering. I guess it's a sign that things are returning to notmal.
There are some times I am with Allie such as yesterday when we were in a hippie store and she struck up a conversation with the guy behing the counter (mid-50's) and just stood there talking polotics and other things with him until I broke it up to leave that things appear quite normal. I spoke with her about having a tutot come over the house to brush her up on college level skill and she agreed that would be a good idea, as long as it wasn't chemistry. I also brough up the idea of going to see a trainer to begin light working out and she agreed at first but then told me she was not going to lift weights as lifting thins still hurt her. She also said her knees still really hurt. Her poor knees took a beating in the accident and have many deep scars on them.
It's a fresh new week and what a great way to start, quiet time, blog and off to work. I know this is going to be a breakthrough week. I am starting to feel my motivation come back where I want to get more projects going again, get Full Recovery - Fully off the ground and get as many people inspired to healing as humanly possible. Last night was the first night I felt comfortable leaving Allie in the living room or dan alone while I went in my office and did some work. Normally I feel like I have to be right there with her so this was a big step and feeling comfortable doing it was even bigger.
If you are in brevard, NC on Saturday, the flylady will be doing a free event at the High School from 9-5. You can get more details at flylady.net
Wll off to work. Have a blessed day and remember that whatever you focus on today will become your reality.
Full Recovery - Never a Doubt
Allie's Dad
PS - Thanks to everyone who sent me their stories. As soon as we get the site up and moving, please look for them on line. You are inspiring others with your words.
Although like to keep all posting on the blog, for those who need to reach me personally my e-mail is drcagen@citcom.net. Also, if you have blogged and would like a response, the blog does not giv eme your e-mail address and will not allow the reply button to work so I am sorry if I have not e-mailed you. Please send me your e-mail addresses.
We also still have many t-shirts and bracelets available. Let's get everyone wearing them, this is an integral past of forming our group of Full Recovery warriors.
Good Morning Everyone
Good weekend, all was well and even better than that. Sat. was quite uneventful with me taking Matt to the motorcycle show and Nancy taking ALlie to the movies. All in all a very quiet day with no highs and no lows.
Sunday was also a good day. I seemed that Allie once again became more awaye on Sunday. I took her to get cranial work done as I do every Sunday and it seems to be helping her in many ways but each time she gets off of the table she seems more centered, calmer and I don;t know how to say it but closer to Allie. After her session we went to lunch and then drove 40 minutes and walked down the old time Main Street of Hendersonville, NC.
Spent alot of time playing cards. The memory game where you turn matching sets of cards face down on a table and themeach person turns over two at a time and the idea is to rember where the cards are so you can match up the pairs. She is dowing that well which is a great improvement to her short term memory. Also playing a lot of pool.
Had lunch with the flylady on Friday and she is helping me get the radio show off of the ground. It will be Tuesday evenings from 7-8 pm eastern time. I'll get back with more details tonight but it will begin Oct 2nd and you will be able to listen to it over the internet.
Allie is having a hard time with Matt right now. Seems she transfers her picking on to different people and right now it's Matt. Kind of hard for a 15 year old boy to not snipe back and in most cases he dosen't - but sometimes (who wouldn't) but I am very proud of both of them and it's kind of refreshing to see some sibling bickering. I guess it's a sign that things are returning to notmal.
There are some times I am with Allie such as yesterday when we were in a hippie store and she struck up a conversation with the guy behing the counter (mid-50's) and just stood there talking polotics and other things with him until I broke it up to leave that things appear quite normal. I spoke with her about having a tutot come over the house to brush her up on college level skill and she agreed that would be a good idea, as long as it wasn't chemistry. I also brough up the idea of going to see a trainer to begin light working out and she agreed at first but then told me she was not going to lift weights as lifting thins still hurt her. She also said her knees still really hurt. Her poor knees took a beating in the accident and have many deep scars on them.
It's a fresh new week and what a great way to start, quiet time, blog and off to work. I know this is going to be a breakthrough week. I am starting to feel my motivation come back where I want to get more projects going again, get Full Recovery - Fully off the ground and get as many people inspired to healing as humanly possible. Last night was the first night I felt comfortable leaving Allie in the living room or dan alone while I went in my office and did some work. Normally I feel like I have to be right there with her so this was a big step and feeling comfortable doing it was even bigger.
If you are in brevard, NC on Saturday, the flylady will be doing a free event at the High School from 9-5. You can get more details at flylady.net
Wll off to work. Have a blessed day and remember that whatever you focus on today will become your reality.
Full Recovery - Never a Doubt
Allie's Dad
PS - Thanks to everyone who sent me their stories. As soon as we get the site up and moving, please look for them on line. You are inspiring others with your words.
Although like to keep all posting on the blog, for those who need to reach me personally my e-mail is drcagen@citcom.net. Also, if you have blogged and would like a response, the blog does not giv eme your e-mail address and will not allow the reply button to work so I am sorry if I have not e-mailed you. Please send me your e-mail addresses.
We also still have many t-shirts and bracelets available. Let's get everyone wearing them, this is an integral past of forming our group of Full Recovery warriors.
Saturday, September 22, 2007
Saturday Morning, September 23rd
Bright and early. The dogs started barking at aroung 5:30 so I jumped up to get them out before they woke up the family but for Allie it was to late. She was already up but now has me to hang out with. Once the dos were out we went in the pool room. The lights stayed out in the room and I sat on the couch just watching her on the computer answering her e-mails. I still can not believe how fast this girl can type, even in the dark. Just one of those things that has always amazed me about her and Matt as I humt and peck with my four finger typing.
Sorry about no blog yesterday but I was tired, bummed out and just kind of on edge. Allie was to go to work yesterday but was bumped to lunch since the evening guests cancelled so there was no one there for breakfast. As I was driving her down there, we got a block from the inn when I noticed something was wrong with her hand. Again she couldn't move it. Instead of getting all freaked out we just decided to go home. I told her right then that we were not going to the hospital we would just go rest. Now the amazing part is that she kind of knew what was happening and I believe willed it to stop and go away. She picked up her left hand with her right and put it on her lap her little fingers curling under. At this point I'm under control but with my heart breaking as I watched her start to massage her fingers so they would straighten out. As I turned the corner to go home I was devestated but saw her working on it and then as if she just told it to go - it went away and began working again; within a minute or two things returned to normal and she was fine. We went home and rested.
The rest of the day was spent checking on her and keeping our positive thoughts flowing. I am so grateful that it was such a short episode or that she has come to control it but will we be forever on edge. I think not but you still wonder. Full Recovery means keeping a positive outlook towards the end goal, whatever that may be and accepting the plans God has created for you, still we are human and have frailities. Today has already begun anew and we have a happy, healthy girl up early, smiling, laughing and enjoying the day, On the ouside I am also. There is an old saying the use in one of the twelve step programs. Never compare your insides to someone elses outsides. It basically means - don;t compare how you feel to the way someone else looks. Guess you could come up with your own meanings but if you have ever seen someone and wondered how they were doing so well when you were crumbling the truth is - they may not be. Please do not read anything more into this - I am not crumbling, I just always type whatever comes into my head.
Last night Nancy and I had a neighbor stay with Allie for a few hours while we went to a friend birthday party down the road. Scary but necessary to get out and work on our relationship every now and again. Home at 9:30 - waht a bunch of party animals.
Well it's still pitch black out and I am excited. I get to spend the day with Matt. We are going to a motorcycle show as we both ride and this is an interest we have in common. What could be better than two men together with thousands of motorcycles and carnival food?
Keep the faith. Full Recovery - Never a Doubt
Allie's Dad
Sorry about no blog yesterday but I was tired, bummed out and just kind of on edge. Allie was to go to work yesterday but was bumped to lunch since the evening guests cancelled so there was no one there for breakfast. As I was driving her down there, we got a block from the inn when I noticed something was wrong with her hand. Again she couldn't move it. Instead of getting all freaked out we just decided to go home. I told her right then that we were not going to the hospital we would just go rest. Now the amazing part is that she kind of knew what was happening and I believe willed it to stop and go away. She picked up her left hand with her right and put it on her lap her little fingers curling under. At this point I'm under control but with my heart breaking as I watched her start to massage her fingers so they would straighten out. As I turned the corner to go home I was devestated but saw her working on it and then as if she just told it to go - it went away and began working again; within a minute or two things returned to normal and she was fine. We went home and rested.
The rest of the day was spent checking on her and keeping our positive thoughts flowing. I am so grateful that it was such a short episode or that she has come to control it but will we be forever on edge. I think not but you still wonder. Full Recovery means keeping a positive outlook towards the end goal, whatever that may be and accepting the plans God has created for you, still we are human and have frailities. Today has already begun anew and we have a happy, healthy girl up early, smiling, laughing and enjoying the day, On the ouside I am also. There is an old saying the use in one of the twelve step programs. Never compare your insides to someone elses outsides. It basically means - don;t compare how you feel to the way someone else looks. Guess you could come up with your own meanings but if you have ever seen someone and wondered how they were doing so well when you were crumbling the truth is - they may not be. Please do not read anything more into this - I am not crumbling, I just always type whatever comes into my head.
Last night Nancy and I had a neighbor stay with Allie for a few hours while we went to a friend birthday party down the road. Scary but necessary to get out and work on our relationship every now and again. Home at 9:30 - waht a bunch of party animals.
Well it's still pitch black out and I am excited. I get to spend the day with Matt. We are going to a motorcycle show as we both ride and this is an interest we have in common. What could be better than two men together with thousands of motorcycles and carnival food?
Keep the faith. Full Recovery - Never a Doubt
Allie's Dad
Thursday, September 20, 2007
Thursday Night, September 20th
Well we made it past ninteen days (the amount of time Allie was home the last time before going back in) so I am breathing again. Not supersticous but then again?
Good day for Allie and I today but she was very rough on Nancy and even though you can rationalize the injury, words sting never the less and when you mix that with tired, tired, tired it is a recipe for well let's just go to bed and have a better day tomorrow.
I took Allie to therapy today and even though you want to ask each therapist how she is doing everytime you go I have resisted. I know she is doing well and will check in once a week - intellectually I know this is not an overnight process and I want to hear the therapist tell me that she is doing awesome and doesn;t have to come anymore but that day will and I just have to hold myself back. It's kind of like the old days and I am sure I am like every parent who likes to hear how well thier child is doing . It's a pride thing I guess, we are all so proud of our children and I am just as proud of her at this moment then I have ever been. One thing I especially like is when she comes out of the therapy room and she is smiling and upbeat and she seems to have had a good time. She is not frustrated or angry - just a little girl coming home from another day at school and all went well on the playground.
After therapy it was off to lunch and then some shopping and back to the office. Nancy is having alot of fun being back at work and I have to admit I am so glad to have her back. her energy is incredible and her smile - like always puts a glow around the building - that's what attracts new patients to our practice.
Allie is going to work tomorrow. She was going to start off with one or two takes for breakfast but the guests cancelled so she will be going in for lunch. Yikes! The boss and I are good friends and they all love Allie so much they will and always have treated her as one of their own family. While I am comfortable, it will be the first time she is away from Nancy or myself and I am having anxiety. Kimmi will never give Allie more than she can handle I just want her to do so well and it's like a parent letting go - I just don't want her to get hurt in any way and I want her to be proud of herself for the job she has done and I am sure she will be.
The web site is coming slow and I am beginning to get frustrated. Maybe I am looking to start to big and just need to take this into my own hands and get something up and then work on refining it from there. I will be having lunch with the flylady tomorrow to seek out some help and advice. Some of her advice today was to get my own internet radio show so that is now done and Full Recovery Radio will make its debut on October 2nd at 7pm - 8-pm. The time and day may change but will be every Tuesday at 7pm after that until other notice. I will get you more info over the weekend but please, please, please help me get the word out. It will be live and we will have guests and we will be able to take calls and blogs while on line.
That's plenty for today. I love you all.
Allie's Dad
Good day for Allie and I today but she was very rough on Nancy and even though you can rationalize the injury, words sting never the less and when you mix that with tired, tired, tired it is a recipe for well let's just go to bed and have a better day tomorrow.
I took Allie to therapy today and even though you want to ask each therapist how she is doing everytime you go I have resisted. I know she is doing well and will check in once a week - intellectually I know this is not an overnight process and I want to hear the therapist tell me that she is doing awesome and doesn;t have to come anymore but that day will and I just have to hold myself back. It's kind of like the old days and I am sure I am like every parent who likes to hear how well thier child is doing . It's a pride thing I guess, we are all so proud of our children and I am just as proud of her at this moment then I have ever been. One thing I especially like is when she comes out of the therapy room and she is smiling and upbeat and she seems to have had a good time. She is not frustrated or angry - just a little girl coming home from another day at school and all went well on the playground.
After therapy it was off to lunch and then some shopping and back to the office. Nancy is having alot of fun being back at work and I have to admit I am so glad to have her back. her energy is incredible and her smile - like always puts a glow around the building - that's what attracts new patients to our practice.
Allie is going to work tomorrow. She was going to start off with one or two takes for breakfast but the guests cancelled so she will be going in for lunch. Yikes! The boss and I are good friends and they all love Allie so much they will and always have treated her as one of their own family. While I am comfortable, it will be the first time she is away from Nancy or myself and I am having anxiety. Kimmi will never give Allie more than she can handle I just want her to do so well and it's like a parent letting go - I just don't want her to get hurt in any way and I want her to be proud of herself for the job she has done and I am sure she will be.
The web site is coming slow and I am beginning to get frustrated. Maybe I am looking to start to big and just need to take this into my own hands and get something up and then work on refining it from there. I will be having lunch with the flylady tomorrow to seek out some help and advice. Some of her advice today was to get my own internet radio show so that is now done and Full Recovery Radio will make its debut on October 2nd at 7pm - 8-pm. The time and day may change but will be every Tuesday at 7pm after that until other notice. I will get you more info over the weekend but please, please, please help me get the word out. It will be live and we will have guests and we will be able to take calls and blogs while on line.
That's plenty for today. I love you all.
Allie's Dad
Wednesday, September 19, 2007
Wednesday Evening, September 18th
Yesterday a really great doctor asked me if I could spell world..then to spell i in alphabetical order!! dlorw..that was so confusing..then he said " I will tell you 4 words..just remember them for a few minute.... tiger, tulip, basket, chair, it was hard at the time but I still remember? Dr's and Nurses have really taught me a lot. I'm so thankful for everyone.
I love you all,
Allie
I love you all,
Allie
Wednesday Evening, September 18th
Everyone is kind of tired today and scattered about doing their own things but each day gets better. Took Allie to the speech therapist today. It's kind of neat having another chiorpactor in the family because Nancy has been wanting to get back ion the office and we may have found a perfect way to get her back in very part time and still have one of us with Allie all of the time. The past few days when Allie has therapy, Nancy has been coming and an I have been taking her to therapy. Kind of perfect! Nancy gets back in some, I get out some and the patients benefit by seeing a much better looking, funnier doctor whi is also awesome at adjusting. Win, win situation.
While at the therapy center, the speech therapist came for Allie and I asked her about some of the homework sheets she has been giving Allie and then they left. After a minute the therapist came back and sensing I had more questions, she came and asked me if I would like to join the session which I did. The work she was having allie do was more deductive reasoning and I thought it was difficult so but we both got the hang of it. It hardseeing some one struggle with work they would have once zipped through but she is tenacious and brilliant and its coming back more and more so. Still all in all -wired and sad at the same time.
When I got home tonight, I checked Allie's math sheet for tomorrow and she got the entire thing right - way to go, One of those things you are so proud over. Tearing up a bit.
Well like I said - tired night, so have a wonderful evening.
Allie's Dad
While at the therapy center, the speech therapist came for Allie and I asked her about some of the homework sheets she has been giving Allie and then they left. After a minute the therapist came back and sensing I had more questions, she came and asked me if I would like to join the session which I did. The work she was having allie do was more deductive reasoning and I thought it was difficult so but we both got the hang of it. It hardseeing some one struggle with work they would have once zipped through but she is tenacious and brilliant and its coming back more and more so. Still all in all -wired and sad at the same time.
When I got home tonight, I checked Allie's math sheet for tomorrow and she got the entire thing right - way to go, One of those things you are so proud over. Tearing up a bit.
Well like I said - tired night, so have a wonderful evening.
Allie's Dad
Tuesday, September 18, 2007
Teusday Evening, September 17th
Hi All
Well I guess I didn;t have to blog yesterday as we had a guest blogger, one whom this site is dedicated to. It was really amazing. I came to the computer area and she was reading the blog. I asked her how she got on and she said she has searched herself on line and saw it there. I then asked her if she wanted to do some writing and to my great surprise - she did. It was really cool watching her read the site because it was truly the first time she was getting an understanding of what the blog was and how it was helping everyone. She was also reading the posts and gettting a real feel and understanding about the emotions which follow trauma and the amount of love, and prayers she was getting from people all around the world. It was heart warming to watch the light come on with regards to understanding.
Today she began reading other peoples blogs. She started with her High School friend Jessie Garren www.caringbridge.co then jessiegarren who is recovering from cancer and then by reading rachel juliano's site www.caringbridge.com - then rachaeljuliano. Well it was on Rachels' site that Allie really becan feeling. She was truly sad for Rachel and for what happened. She kept talking about how pretty she was and began reporting to me what her posts were and how sad people wqere and how beautiful some of the writing were and then I told her that was how it was with her you see Allie does not remember anything before going into the rehab and probably even alot of the time in there so it was inpossible for her to remember how she was or the pain she was in or the pain we and many others were in but when she read what had happened to Rachel and how it affected everyone she began to relate that how Rachel was is how she was and that made the so grateful for where she is now but at the same time so emotion for her on-line friends. What cool growth right before my eyes.
The trip to the new neurologist yesterday was teriffic, A very nice man who was patient and understanding and the first thing I liked about him was that he directed all of his questions towards Allie, looking onlt to me to clarify or fill things in. He was tuning into her and I liked that - alot, she has the story, ask her. Along the way he played games with her challenging her memory and cognitave thinking abilities in a friendly - non-threatening way. He asked her to remember four words and then a few minutes later asked her to repeat them, she got 2.5 out of four but with very little prompting she got the rest (hey I forgot one). The he asked her to spell world which she did and the out of the blue her asked her to alphabetize the word world without paper. She got it the second time (off by one letter) I got it the second time also so I guess I am as smart as a teenager. Hey if you think that's easy try it right now - pick a five letter word and spell it backwards. He pretty much gave her a good bill of health but I also gave him a huge box of reports, MRI's, Cat Scans Yadda Yadda Yadda and he said it would take him awhile to go through it. I would take me a month but he was encouraging and we liked him.
After many calls to the hospital, I finally got a return call from the hemotologist who sent her blood work to the MAYO Clinic and all of her blood work came back A-OK.
Today was a great therapy day again. We are seeing a speech therapist for cognative thinking skills and she is doing well, we refuse to point out or shine the spotlight on defecits so I will only point out that she is awesome and getting better everyday. She now gets homework at night and makes a very good attempt at it. Another thing we have stopped doing is letting medical professionals speak in front of her, they are insensative and at times think she does not understand what they are saying and while that may be so at times their words put a label on things and abilities and that gets into her psyche and we have to go in, remove all things negative and replace it with a can do attitude and remove all labels - brain injured - no way - momentarily stunned maybe but not damaged. I really think that we need to stop this practice - talks to parents in private and remove the stigma of labels thereby creating a more positive attitude of accomplishment. I am sure we can all remember being called names in scholl and how it stungs and for some scarred for life well I find these words and conversations hurtful for her and for us.
We walked around Asheville after therapy today. These are times I really treasure and am grateful for especially having the opportunity or creating the opportunity (closing the office to make the opportunity) to be with her at her appointments and then spend quality time during the day walking the shops and having lunch together. She has been so sweet thinking every time we go out about getting Nancy a birthday present. I don;t think it would have entered her consciousness prior to the accident until the day or two before and here we are about 4 weeks out and she just thinks about it all the time. Well she found something today in a small shop and it was just perfect. Can't say what it is because her mom reads this blog to.
Well don't ever give me a day off again because as usual I can go on and on but today's growth and understanding was just more than my heart could hold.
Thanks everyone. Thank you for responding to her and thank you for being there for all of us.
Love and Recovery
Allie's Dad
Well I guess I didn;t have to blog yesterday as we had a guest blogger, one whom this site is dedicated to. It was really amazing. I came to the computer area and she was reading the blog. I asked her how she got on and she said she has searched herself on line and saw it there. I then asked her if she wanted to do some writing and to my great surprise - she did. It was really cool watching her read the site because it was truly the first time she was getting an understanding of what the blog was and how it was helping everyone. She was also reading the posts and gettting a real feel and understanding about the emotions which follow trauma and the amount of love, and prayers she was getting from people all around the world. It was heart warming to watch the light come on with regards to understanding.
Today she began reading other peoples blogs. She started with her High School friend Jessie Garren www.caringbridge.co then jessiegarren who is recovering from cancer and then by reading rachel juliano's site www.caringbridge.com - then rachaeljuliano. Well it was on Rachels' site that Allie really becan feeling. She was truly sad for Rachel and for what happened. She kept talking about how pretty she was and began reporting to me what her posts were and how sad people wqere and how beautiful some of the writing were and then I told her that was how it was with her you see Allie does not remember anything before going into the rehab and probably even alot of the time in there so it was inpossible for her to remember how she was or the pain she was in or the pain we and many others were in but when she read what had happened to Rachel and how it affected everyone she began to relate that how Rachel was is how she was and that made the so grateful for where she is now but at the same time so emotion for her on-line friends. What cool growth right before my eyes.
The trip to the new neurologist yesterday was teriffic, A very nice man who was patient and understanding and the first thing I liked about him was that he directed all of his questions towards Allie, looking onlt to me to clarify or fill things in. He was tuning into her and I liked that - alot, she has the story, ask her. Along the way he played games with her challenging her memory and cognitave thinking abilities in a friendly - non-threatening way. He asked her to remember four words and then a few minutes later asked her to repeat them, she got 2.5 out of four but with very little prompting she got the rest (hey I forgot one). The he asked her to spell world which she did and the out of the blue her asked her to alphabetize the word world without paper. She got it the second time (off by one letter) I got it the second time also so I guess I am as smart as a teenager. Hey if you think that's easy try it right now - pick a five letter word and spell it backwards. He pretty much gave her a good bill of health but I also gave him a huge box of reports, MRI's, Cat Scans Yadda Yadda Yadda and he said it would take him awhile to go through it. I would take me a month but he was encouraging and we liked him.
After many calls to the hospital, I finally got a return call from the hemotologist who sent her blood work to the MAYO Clinic and all of her blood work came back A-OK.
Today was a great therapy day again. We are seeing a speech therapist for cognative thinking skills and she is doing well, we refuse to point out or shine the spotlight on defecits so I will only point out that she is awesome and getting better everyday. She now gets homework at night and makes a very good attempt at it. Another thing we have stopped doing is letting medical professionals speak in front of her, they are insensative and at times think she does not understand what they are saying and while that may be so at times their words put a label on things and abilities and that gets into her psyche and we have to go in, remove all things negative and replace it with a can do attitude and remove all labels - brain injured - no way - momentarily stunned maybe but not damaged. I really think that we need to stop this practice - talks to parents in private and remove the stigma of labels thereby creating a more positive attitude of accomplishment. I am sure we can all remember being called names in scholl and how it stungs and for some scarred for life well I find these words and conversations hurtful for her and for us.
We walked around Asheville after therapy today. These are times I really treasure and am grateful for especially having the opportunity or creating the opportunity (closing the office to make the opportunity) to be with her at her appointments and then spend quality time during the day walking the shops and having lunch together. She has been so sweet thinking every time we go out about getting Nancy a birthday present. I don;t think it would have entered her consciousness prior to the accident until the day or two before and here we are about 4 weeks out and she just thinks about it all the time. Well she found something today in a small shop and it was just perfect. Can't say what it is because her mom reads this blog to.
Well don't ever give me a day off again because as usual I can go on and on but today's growth and understanding was just more than my heart could hold.
Thanks everyone. Thank you for responding to her and thank you for being there for all of us.
Love and Recovery
Allie's Dad
Tuesday Afternoon, September 17th
Hi everyone! I'm sure we're all happy that it's me writing again. I loved all of the comments I got after my post. If you'd like to email me it's drcagen@citcom.net ... I've been so blessed to have so many great people thinking of me and praying for me..it's really helped me I love it. and I love all of you.
Love,
Allie
Love,
Allie
Monday, September 17, 2007
Monday Afternoon, September 17th
Hi everyone!! This is Allie for the first time! I would love to thank each and every one of you for all of your gifts and prayers. They have helped me so much. I'm soo thankful that I'm completly better. It was a scary situation for everyone involved and aware of it. The prayers really helped. I'm so happy to see all the love I have. Thank you all for your attention to everything.
Love, Allie
Love, Allie
Monday Morning, September 16th
Spent the morning catching up on other blogs, reading others stories and knowing the heart break they are going through. Not sure if it is the best thing to do first thing in the morning but it will sure get your heart in the right place for the day and will most certainly raise your gratitude level.
Last night Allie woke up while I was watching TV and came out to the den and gave me a big hug, then just sat on the couch in silence and watched with me. Pretty nice, especially after the day we had. Then at 4:30 this morning I saw her light on and went to check on her. She had made microwave popcorn and was sitting in bed like a princess eating it and watching tv. How funny! This morning there was a half a bowl of popcorn on the counter and she was sleeping so I guess all went well.
Thanks for all of your prayers and wishes. They really help.
All of my love
Allie's Dad
Last night Allie woke up while I was watching TV and came out to the den and gave me a big hug, then just sat on the couch in silence and watched with me. Pretty nice, especially after the day we had. Then at 4:30 this morning I saw her light on and went to check on her. She had made microwave popcorn and was sitting in bed like a princess eating it and watching tv. How funny! This morning there was a half a bowl of popcorn on the counter and she was sleeping so I guess all went well.
Thanks for all of your prayers and wishes. They really help.
All of my love
Allie's Dad
Sunday, September 16, 2007
Sunday Morning, September 16th
Stayed up quite last last night putting together the finishing touches on the game room and it was the best thing we have ever done. Now, instead of staying in the small den all the time we are all together in the large living room (which we are now living in) and faving fun together. Instead of just watching tv we are all gettin active together. We have a piano and weights and a treadmill in the room so there is alot to do. There is also a couch so if you just want to hang out with everyone you can. Yesterday I was sitting in the den after a five hour job of cleaning out the garage. and I was sitteng in the den and there was Allie playing the piano, Matt shooting pool and Nancy just sitting on the couch talking with them. Hallmark moment
The last few days have been kind of difficult with alot of snippyness and some old behavior and today was the head of it all. While you understand that there is an injury, you can sometimes be lulled into a false sense of security. You know while she is still in the learning phase and and you can see her deficits, you can go along thinking everything is now peaches and cream and will stay that way until you get another rude awakening. Now not real bad but just enough to create an underlying but noticeable tension and uneasiness. Actually I think you begin to worry again and wonder if you will ever stop and the more times it happens and the more you get your bubble broken - no matter how minor, it walwys takes you back to a more unpleasant time.
It's really hard if not impossible to use reason or logic with a tbi because the way they or she sees it is the way she sees and that's it. To my friend Mark Clark, she made me think of you today and laugh when she aske me if I COULD DO SOMETHING!
She will be seeing the new neurologist tomorrow and I am looking forward to a fresh start in a new city. Then piano lesson in the afternoon and a visit to the cranial -sacral doctor. Long day, I hope she is up for it. The anti-seizure medication really makes her tired and she likes to go to bed before 8 pm. Your mind just never stops and you do on a spiritual level try to figure out why or was there anythiong you did or could have done differently you can'yt put alot of time or emotion into it. Personally I don't believe it could have been done any differently, In the whole grand scheme of things this was preordained and destined to happen and if you hold on to your failth you cna hold on to your calmness and enthusiastic oulook on the situation.
Sorry to keep popping in an out on blogs but when I blog at home interruptions occur.
Love and Recovery,
Allies Dad
The last few days have been kind of difficult with alot of snippyness and some old behavior and today was the head of it all. While you understand that there is an injury, you can sometimes be lulled into a false sense of security. You know while she is still in the learning phase and and you can see her deficits, you can go along thinking everything is now peaches and cream and will stay that way until you get another rude awakening. Now not real bad but just enough to create an underlying but noticeable tension and uneasiness. Actually I think you begin to worry again and wonder if you will ever stop and the more times it happens and the more you get your bubble broken - no matter how minor, it walwys takes you back to a more unpleasant time.
It's really hard if not impossible to use reason or logic with a tbi because the way they or she sees it is the way she sees and that's it. To my friend Mark Clark, she made me think of you today and laugh when she aske me if I COULD DO SOMETHING!
She will be seeing the new neurologist tomorrow and I am looking forward to a fresh start in a new city. Then piano lesson in the afternoon and a visit to the cranial -sacral doctor. Long day, I hope she is up for it. The anti-seizure medication really makes her tired and she likes to go to bed before 8 pm. Your mind just never stops and you do on a spiritual level try to figure out why or was there anythiong you did or could have done differently you can'yt put alot of time or emotion into it. Personally I don't believe it could have been done any differently, In the whole grand scheme of things this was preordained and destined to happen and if you hold on to your failth you cna hold on to your calmness and enthusiastic oulook on the situation.
Sorry to keep popping in an out on blogs but when I blog at home interruptions occur.
Love and Recovery,
Allies Dad
Saturday, September 15, 2007
Saturday Morning, September 15th
Good Morning. Bright and Early. Allie and I are watching movies and just talking. No rain in the forecast today so maybe we will just go for a long walk and rest today.
I have been asked for my personal e-mail address, it is drcagen@citcom.net
Stay strong of faith and ever vigilant.
Your friend in Recovery
Allie's Dad
I have been asked for my personal e-mail address, it is drcagen@citcom.net
Stay strong of faith and ever vigilant.
Your friend in Recovery
Allie's Dad
Friday, September 14, 2007
Friday Evening, September 14
Sorry I couldn't get back yesterday but just as I imaginged, it wsa a great day but today was even better. I took Allie down to Greenville for a check up by the neurosurgeon and walked away feeling very good. Dr. Gardner is my guy. To me he is superman> There are not enough words to say how much I respect this guy and if there is someone I am going to listen to - it's him. Well he gave Allie a clean checkup and was very pleased at the progress she was making. He also made me feel validated about my beliefs and the way I handled Allie in her most recent Situation.
You know, things can get rough and demanding and even tiring, I have been tired since May but we are of the belief that this is a great time in our lives and actually and through all of the trials the opportunity has never been great to reshape our family. A second chance if you will to take something was was great and make it even better. As having never been through this situation I am blind and ignorant of what and what can not be accomplished so to me - everything can be accomplished, every goal can be achieved and every dream made true. Many people who have suffered from far greater injuries than Allie has, have gone on to lead lives of extrordinary success and there is no reason for Allie not to, The other night while driving home I was listening to the James Dobson show and a fellow was speaking on the radio and I remember telling myself what a wonderful storyteller this guy was and what a true talent it is to be so good. Well as he went on her told of being a strapping young man - a highschool athlete who overnight her was striken with polio total paralysis. For the next few years he endured the torture of his therapies as they stretched his muscles twice a day, tearing the frozen ones apart only to regain use of one arm and only half way. Well as it goes on he has dreams of being a physical education teacher, a pilot and a guitar player, now these were before the polio while he was still active. In the end with tears inbetween he accomplished his goals with no use of his legs and only half of one arm. He became a physed teacher, owns and flies his own plane and plays in a band. So to one and all Full Recovery truly is an attitude and an accomplishale goal - to Allie and to those suffering greater.
She is in bed right now and Nancy is getting Matt, I don;t know about you but that's sounds pretty good to me.
Have a great night
Allie's Dad
You know, things can get rough and demanding and even tiring, I have been tired since May but we are of the belief that this is a great time in our lives and actually and through all of the trials the opportunity has never been great to reshape our family. A second chance if you will to take something was was great and make it even better. As having never been through this situation I am blind and ignorant of what and what can not be accomplished so to me - everything can be accomplished, every goal can be achieved and every dream made true. Many people who have suffered from far greater injuries than Allie has, have gone on to lead lives of extrordinary success and there is no reason for Allie not to, The other night while driving home I was listening to the James Dobson show and a fellow was speaking on the radio and I remember telling myself what a wonderful storyteller this guy was and what a true talent it is to be so good. Well as he went on her told of being a strapping young man - a highschool athlete who overnight her was striken with polio total paralysis. For the next few years he endured the torture of his therapies as they stretched his muscles twice a day, tearing the frozen ones apart only to regain use of one arm and only half way. Well as it goes on he has dreams of being a physical education teacher, a pilot and a guitar player, now these were before the polio while he was still active. In the end with tears inbetween he accomplished his goals with no use of his legs and only half of one arm. He became a physed teacher, owns and flies his own plane and plays in a band. So to one and all Full Recovery truly is an attitude and an accomplishale goal - to Allie and to those suffering greater.
She is in bed right now and Nancy is getting Matt, I don;t know about you but that's sounds pretty good to me.
Have a great night
Allie's Dad
Thursday, September 13, 2007
Thursday Morning, September 13th
Ah morning, the best time of the day. Dark, quiet, no one up yet, no drame, nothing to think about but how I picture the outcome to be. Me alone with my thoughts createing my reality the way I see it and desire it to be. How should today turn out? In my reality it is going to be a perfect day.
Be back later. The silence is broken
Be back later. The silence is broken
Wednesday, September 12, 2007
Wednesday Evening, September 12th
Wow! What an overwhelming show of support and love from everyone around the world Allie and for our family. You'ze guys (hey I still have a little NY n me) are what has made this recovery doable.
Kind of a quit day. I am still at work and have lived vicariously through the phone lines today but have been assurred that everyone is having a good day - a bit snippy today but that's OK. She has been a litle snippy for the past few days, not a lot but noticeable at times.
AFter thinking that we would have to wait many weeks to get her an appointment with the new neurology group an appointment opened up on Monday - imagine that? Universe at work? ANyhow it is not with the doctor we had hoped to see in the group (at least not yet - ha ha) but we are grateful to get in so quickly. The next few days are just therapy appointments and doctors but such is life for the next few months. It good getting the time alone in the car and just hearing her sing to songs again.
The pool table came today so I guess tonight is game night and hopefully every day will be. It's wierd that you can go through your whole life just existing and not really being happy when you can just turn the happy switch on - it's hard and has to be practiced but it can be done. Everyday just runs into the next and you can get so tired but really, it can all be over tomorrow so let's go home and have fun today.
Love you all.
Allie's Dad
PS - Do you like my new picture?
Kind of a quit day. I am still at work and have lived vicariously through the phone lines today but have been assurred that everyone is having a good day - a bit snippy today but that's OK. She has been a litle snippy for the past few days, not a lot but noticeable at times.
AFter thinking that we would have to wait many weeks to get her an appointment with the new neurology group an appointment opened up on Monday - imagine that? Universe at work? ANyhow it is not with the doctor we had hoped to see in the group (at least not yet - ha ha) but we are grateful to get in so quickly. The next few days are just therapy appointments and doctors but such is life for the next few months. It good getting the time alone in the car and just hearing her sing to songs again.
The pool table came today so I guess tonight is game night and hopefully every day will be. It's wierd that you can go through your whole life just existing and not really being happy when you can just turn the happy switch on - it's hard and has to be practiced but it can be done. Everyday just runs into the next and you can get so tired but really, it can all be over tomorrow so let's go home and have fun today.
Love you all.
Allie's Dad
PS - Do you like my new picture?
Tuesday, September 11, 2007
Tuesday Evening, September 11th
Well things seem to be slowing down and evening out - this is good news but kind of wired. There are not those emotional highs and lows at the moment but we have had that before so you are always slleping half awake and with one eye open but at the same time you feel relaxed a little at ease. You can almost breathe again however I am certain deep down that we are done with the critical care and have been blessed to move on to the next level.
Two things begin to happen at this point which kind of bother me a little because I need both of them - one: I seem to have slowed down on the blog because things are smooth and two: alot less people are reading and responding and that is just the natural progression of things but I am comitting to continue the blog until Allie is in college or has reached Full Recovery and there is nothing else to report. Either way I hope you all will continue to stay with me.
Thigs really have evened out and Allie is healing at a wonderful pace. We met today with the case worker at the rehab and she was amazing. She was organized and well versed in working with brain injury patients, she knew the neurologists and is able to get us appointments with the proper doctors and therapists. We are all very comfortable at the new rehab and look forward to going for our appointments. Allioe really likes that we all go out for lunch afterwards also. This experience really has led us to change our life styles and while I am still driven for success and motivated to achieve, it is now in a different way. I love spending time together with everyone.
Tomorrow the pool table is being delievered and Allie is so excited. We cleared out the living room and as of tomorrow we will really begin living in it. I don;t know why we have living rooms but never live in them. Now after changing it into a game room the family and friends are all set to gather aroung and have alot of fun together.
Allie's attention span is increasing every day. She did 45 minutes in K-Mart the other day and she looks beautiful as her hair grow in. Her sense of humor is back and once again she is a non-stop chatter box. The case manager brought up about Allie beginning to drive again and we were all like whoa, she was talking about down the road and the training she will need but still it ws like whoa is anyone out there selling a used tank, guess I'll have to get in touch with the army for a used Hummer or one of those armored vehicles.
Allie began lessons with a new music teacher who she said she really liked and enjoyed her lesson. He is a really good guy and good friend named Bob Hamilton who has been involved in music and teaching his whole like and has actually worked and conducted orchestras on Broadway. He is working on theory and helping Allie regain her pitch and relearn the piano. God has blessed us and we continue to use our affirmations that we are meeting all the right people in all the right places who want to help us in every way possible and that we are happier, healthier and wealthier than we have ever been.
The more we go through this process then more we realize that we can never, even for an instance allow a negative thought to enter our minds with regards not only to Allie's progress but to our entire lives - work, relationships, finances and we can not fear because as Dad says, fear is such a useless and wasted emotion. God, how much we fear and worry only to find out how useless it is and how hameful and devestating it is. One of Allie's favorite sayings is happiness is optional and it is so true.
I am still praying so hard for everyone out there Paige, Rachel and everyone suffering. You can visit them at caringbridge.com type in paigecook or racheljuliano
Full Recovery - Never a Doubt
Allie's Dad
Two things begin to happen at this point which kind of bother me a little because I need both of them - one: I seem to have slowed down on the blog because things are smooth and two: alot less people are reading and responding and that is just the natural progression of things but I am comitting to continue the blog until Allie is in college or has reached Full Recovery and there is nothing else to report. Either way I hope you all will continue to stay with me.
Thigs really have evened out and Allie is healing at a wonderful pace. We met today with the case worker at the rehab and she was amazing. She was organized and well versed in working with brain injury patients, she knew the neurologists and is able to get us appointments with the proper doctors and therapists. We are all very comfortable at the new rehab and look forward to going for our appointments. Allioe really likes that we all go out for lunch afterwards also. This experience really has led us to change our life styles and while I am still driven for success and motivated to achieve, it is now in a different way. I love spending time together with everyone.
Tomorrow the pool table is being delievered and Allie is so excited. We cleared out the living room and as of tomorrow we will really begin living in it. I don;t know why we have living rooms but never live in them. Now after changing it into a game room the family and friends are all set to gather aroung and have alot of fun together.
Allie's attention span is increasing every day. She did 45 minutes in K-Mart the other day and she looks beautiful as her hair grow in. Her sense of humor is back and once again she is a non-stop chatter box. The case manager brought up about Allie beginning to drive again and we were all like whoa, she was talking about down the road and the training she will need but still it ws like whoa is anyone out there selling a used tank, guess I'll have to get in touch with the army for a used Hummer or one of those armored vehicles.
Allie began lessons with a new music teacher who she said she really liked and enjoyed her lesson. He is a really good guy and good friend named Bob Hamilton who has been involved in music and teaching his whole like and has actually worked and conducted orchestras on Broadway. He is working on theory and helping Allie regain her pitch and relearn the piano. God has blessed us and we continue to use our affirmations that we are meeting all the right people in all the right places who want to help us in every way possible and that we are happier, healthier and wealthier than we have ever been.
The more we go through this process then more we realize that we can never, even for an instance allow a negative thought to enter our minds with regards not only to Allie's progress but to our entire lives - work, relationships, finances and we can not fear because as Dad says, fear is such a useless and wasted emotion. God, how much we fear and worry only to find out how useless it is and how hameful and devestating it is. One of Allie's favorite sayings is happiness is optional and it is so true.
I am still praying so hard for everyone out there Paige, Rachel and everyone suffering. You can visit them at caringbridge.com type in paigecook or racheljuliano
Full Recovery - Never a Doubt
Allie's Dad
Sunday, September 9, 2007
Sunday Evening, September 9th
Quiet day around the house. Took Allie to her therapy this afternoon. On Sunday's we have a D.O. who practices cranial sacral therapy work on Allie for an hour and it really seems to help her. We have come to understand that there is so much more to healing than just the physical, it truly goes way beyond that to the emotional stuff that this jammed up in the body also. Reading a few good books on it now but that has always been in line whith what we have been taught in school with reagrds to the nervous system and the scars it can hold for a long time. This doctor and the phycologist are both working in the same realms of emotionsal release in the body, brain and nerve system.
I have often been so thankful for the way Allie is healing physically and emotionally. I am so grateful that she is happy healing the way she is and is definitely not depressed about school or the accident as she could very well be - maybe in the future but I don;t think so. Also she has no desire to drive or press beyond her abilities, she is growing a a wonderfully steady pace.
Just TV tonight. As Allie would say - Peace - Out
Allie's Dad
I have often been so thankful for the way Allie is healing physically and emotionally. I am so grateful that she is happy healing the way she is and is definitely not depressed about school or the accident as she could very well be - maybe in the future but I don;t think so. Also she has no desire to drive or press beyond her abilities, she is growing a a wonderfully steady pace.
Just TV tonight. As Allie would say - Peace - Out
Allie's Dad
Sunday Morning, September 10th
Seems like the days are starting to normalize and by normalize I don;t mean back to where they were but we are getting into a routine with an end goal in mind. Full Recovery - Never a Doubt.
I had the pleaseure of taking Allie out for the day yesterday, flea market (5 minutes), store (5 minutes), lunch and then home. Somethimes things overwhelm her and she wants to be there but can't take all of the sounds, sights or smells - yesterday at the flea market it was the smell of cigarettes that got to her and at the store maybe incense of whatever the smell was.
Things seem to be coming along and we are grateful every moment. Still a long way to go but one day at a time.
Our hearts go out to everyone fighting the fight. Thank you all for checking on us and loving us the way you do.
Sunday and we still have therapies to go to, so another day closer to the goal.
God Bless
Allie's Dad
I had the pleaseure of taking Allie out for the day yesterday, flea market (5 minutes), store (5 minutes), lunch and then home. Somethimes things overwhelm her and she wants to be there but can't take all of the sounds, sights or smells - yesterday at the flea market it was the smell of cigarettes that got to her and at the store maybe incense of whatever the smell was.
Things seem to be coming along and we are grateful every moment. Still a long way to go but one day at a time.
Our hearts go out to everyone fighting the fight. Thank you all for checking on us and loving us the way you do.
Sunday and we still have therapies to go to, so another day closer to the goal.
God Bless
Allie's Dad
Saturday, September 8, 2007
Saturday Morning, September 6th
Another good day yesterday and on the road to Full recovery.
Yesterday was a full day and Allie did great but one thing I forgot was that she had a voice lesson on Thursday and did a great job for Ms. Ginger.
Funny way the Universe works. My pal Joey D recommended a top neurosurgeon for me to talk to that knows however, I could not get to him on the phone and was almost resigned to never speaking with him. Well yesterday Nancy and I dropped our cars off for service at a dealership in Asheville and as I was standing at the service desk waiting for Nancy to arrive a sporty black Mercedes roled in and a guy in scrubs got out and came over tot he counter as, I am sure you can guess by now he was wearing a white lab jacket with his name on it and it was the doctor I was trying to get in touch with. My how the universe provides. Anyhow, we got to talking and he referred us to a neurologist in our area and gace us the referral to get in. How cool.
After that we went to the rehab center and Allie met with and got evaluated by the new Occupational Therapist and Speech Therapist. As it turns out the OC said Allie did not need her as she was really doing well with her activities of daily living and the speech therapist was really good - 16 years of working with brain injuries - so we are in the right places.
After that we went pool table hunting and found one and a beautiful person from our community called and gave us a wonderful foosball table. It was a day when everything in the universe was in alignment.
This morning Nancy went canoeing with some friends and Allie and I will be going to the flea market - one of our favorite past times that we always did together.
Have a beautiful day.
Allie's Dad
Yesterday was a full day and Allie did great but one thing I forgot was that she had a voice lesson on Thursday and did a great job for Ms. Ginger.
Funny way the Universe works. My pal Joey D recommended a top neurosurgeon for me to talk to that knows however, I could not get to him on the phone and was almost resigned to never speaking with him. Well yesterday Nancy and I dropped our cars off for service at a dealership in Asheville and as I was standing at the service desk waiting for Nancy to arrive a sporty black Mercedes roled in and a guy in scrubs got out and came over tot he counter as, I am sure you can guess by now he was wearing a white lab jacket with his name on it and it was the doctor I was trying to get in touch with. My how the universe provides. Anyhow, we got to talking and he referred us to a neurologist in our area and gace us the referral to get in. How cool.
After that we went to the rehab center and Allie met with and got evaluated by the new Occupational Therapist and Speech Therapist. As it turns out the OC said Allie did not need her as she was really doing well with her activities of daily living and the speech therapist was really good - 16 years of working with brain injuries - so we are in the right places.
After that we went pool table hunting and found one and a beautiful person from our community called and gave us a wonderful foosball table. It was a day when everything in the universe was in alignment.
This morning Nancy went canoeing with some friends and Allie and I will be going to the flea market - one of our favorite past times that we always did together.
Have a beautiful day.
Allie's Dad
Friday, September 7, 2007
Friday Morning, September 5th
Good Morning!! Tired as all get out today.
Allie had a very good day yesterday but seemed to be tired and why shouldn;t she be but she still was in good spirits and working on healing. Her voice coach came over and did a solid one hour lesson with her and then she came down town and she and I went out for lunch at the Inn on Main a beautiful bed and breakfast where she works as a waitress. She had a lovely quiche and I a salad as I have put on a few pounds during this process then the next think I know it's 9:30 at night and I am just pulling in from work. Long day but Nancy said the evening went very well and Allie said to tell Dad I love him before she went in.
This morning it's off to meet with the new speech therapist and occuipational therapist so we have to get her up at 7:00am - see how that goes.
Any how it's a great day for a breakthrough so have a spectacular day.
Allie's Dad
Allie had a very good day yesterday but seemed to be tired and why shouldn;t she be but she still was in good spirits and working on healing. Her voice coach came over and did a solid one hour lesson with her and then she came down town and she and I went out for lunch at the Inn on Main a beautiful bed and breakfast where she works as a waitress. She had a lovely quiche and I a salad as I have put on a few pounds during this process then the next think I know it's 9:30 at night and I am just pulling in from work. Long day but Nancy said the evening went very well and Allie said to tell Dad I love him before she went in.
This morning it's off to meet with the new speech therapist and occuipational therapist so we have to get her up at 7:00am - see how that goes.
Any how it's a great day for a breakthrough so have a spectacular day.
Allie's Dad
Thursday, September 6, 2007
Thursday Morning, September 5th
Gooood Morning! Bright and earlt, my time of day and is it ever going to be a beautiful one. The mountain air is starting to crisp as we move into fall and before you know it the leaves will be turing and the mountain will be a canvas of God's colors.
Anyhow enough of that. Yesterday was a great day in the healing process. As each day passes I wonder what really happened to Allie to set her into a tailspin over the last two weeks ands I am more and more convinced that it was a single healing episode inside the brain as it transitioned to a higher healing process, a hiccup if you will as the brain reset it self for more healing. Ofcourse wil will follow all precautions but in the grand scheme of things we are so blessed. Still quite scary but very blessed.
Allie and Nancy went to Hendersonville, NC yesterday and walked most of the shops on the Main Street and when I got home last night, Allie was very excited to show me her new purchase - a beautiful necklace. It was metal flowers and really colorful. Allie looks great with colors and lots of them. She has always been quite flambouyant.
Met with a professional web designed last night, one who I felt would make Full Recovery.net more than just a great site but would make it a great site with love and feeling vs. just a technical, cold site.
Well Allie is up so I am gone.
Have a great day
Allie's Dad
Anyhow enough of that. Yesterday was a great day in the healing process. As each day passes I wonder what really happened to Allie to set her into a tailspin over the last two weeks ands I am more and more convinced that it was a single healing episode inside the brain as it transitioned to a higher healing process, a hiccup if you will as the brain reset it self for more healing. Ofcourse wil will follow all precautions but in the grand scheme of things we are so blessed. Still quite scary but very blessed.
Allie and Nancy went to Hendersonville, NC yesterday and walked most of the shops on the Main Street and when I got home last night, Allie was very excited to show me her new purchase - a beautiful necklace. It was metal flowers and really colorful. Allie looks great with colors and lots of them. She has always been quite flambouyant.
Met with a professional web designed last night, one who I felt would make Full Recovery.net more than just a great site but would make it a great site with love and feeling vs. just a technical, cold site.
Well Allie is up so I am gone.
Have a great day
Allie's Dad
Tuesday, September 4, 2007
To all of our friends in the Western Carolina's and Upstate of SC:
This information was sent to us by our good friend Ondine. We hope many of you can attend.
Dear Steve and Nancy:
I wanted to remind you that I'm having the Nia Jam fundraiser for Full Recovery this Saturday - in case you want to mention it on the blog. Lots of people in the area may be interested to come out and support the cause.
Nia Jam
Fitness that's Fun!
Join local Nia teachers and students of all ages for a great workout that's easy on the spine and gentle on the joints; safe for all levels of fitness.
Hendersonville YMCA
10:10 - 11:30
$10 suggested donation per person
For more info see http://www.niacarolina.com
This information was sent to us by our good friend Ondine. We hope many of you can attend.
Dear Steve and Nancy:
I wanted to remind you that I'm having the Nia Jam fundraiser for Full Recovery this Saturday - in case you want to mention it on the blog. Lots of people in the area may be interested to come out and support the cause.
Nia Jam
Fitness that's Fun!
Join local Nia teachers and students of all ages for a great workout that's easy on the spine and gentle on the joints; safe for all levels of fitness.
Hendersonville YMCA
10:10 - 11:30
$10 suggested donation per person
For more info see http://www.niacarolina.com
Tuesday Evening, September 4th
Today was a dream.
Got Matt to school and then came home to pick up Allie. She woke up in a teriffic mood and looked great. We were going to head out to look for a foosball table because she loves to play (great therapy for her left side and hand eye coodrination) and then off to meet with the new psycologist at the Care Partners Rehab Center.
We headed down the road and Allie looked great. She had hopped into the hot tub (cool tub) and then Nancy did her hair and put make up on her and we headed out. She looked fabulous - she had her sun glasses on and was carrying her pocket book and she felt like hitting the road; just like the old days. Allie and I are travelking buddies. Nancy and Matt are home bodies and Allie and I always like to get out so we head off to the flea market or the mall or whereever. Well we went to Docks Sporting Goods and no luck there, matbe in four weeks; from there we went to the mall to look and Allie was in her glory - that's our gorl but she had a pocket full of money and didn;t spend a dime. No luck there either but as we were leaving she ran into two of her friends and that made her day!
Next stop, the rehab center. Nice place and the people were nice. The psycologist was very cool and into somatic therapy and all things natural - hey just like us. As we left Aliie said she liked her so we were off to a good start.
She still has some of the rash left but it is clearing up nicely and the eurologist from Greenville hospital called to check on her today also. nancy said that he was very nice and all was well. I thought that was a very cool thing to do. CYA? but still very cool.
After the rehab it was a quick stop at the auto dealership. I has my sports car in there for a minor reapir and while it was there someone offered to buy it - OK. Sad to see it go but.......
On the way home we decided to stop for some ice cream, got it and drove into the national forest where we sat by the river and just talked for a few moments. Heavenly bliss.............
Back home now and all is well. So how was your day?
Allie's Dad
PS the affirmations continue to work; we have been using - everyday in every way all the right people in all the right places are coming into our lives to help us and we are happier, healthier and wealthier than we have ever been. Pretty cool. Affirmations do work! Also Allie now does not mind me doing the blog so all is well!!
Got Matt to school and then came home to pick up Allie. She woke up in a teriffic mood and looked great. We were going to head out to look for a foosball table because she loves to play (great therapy for her left side and hand eye coodrination) and then off to meet with the new psycologist at the Care Partners Rehab Center.
We headed down the road and Allie looked great. She had hopped into the hot tub (cool tub) and then Nancy did her hair and put make up on her and we headed out. She looked fabulous - she had her sun glasses on and was carrying her pocket book and she felt like hitting the road; just like the old days. Allie and I are travelking buddies. Nancy and Matt are home bodies and Allie and I always like to get out so we head off to the flea market or the mall or whereever. Well we went to Docks Sporting Goods and no luck there, matbe in four weeks; from there we went to the mall to look and Allie was in her glory - that's our gorl but she had a pocket full of money and didn;t spend a dime. No luck there either but as we were leaving she ran into two of her friends and that made her day!
Next stop, the rehab center. Nice place and the people were nice. The psycologist was very cool and into somatic therapy and all things natural - hey just like us. As we left Aliie said she liked her so we were off to a good start.
She still has some of the rash left but it is clearing up nicely and the eurologist from Greenville hospital called to check on her today also. nancy said that he was very nice and all was well. I thought that was a very cool thing to do. CYA? but still very cool.
After the rehab it was a quick stop at the auto dealership. I has my sports car in there for a minor reapir and while it was there someone offered to buy it - OK. Sad to see it go but.......
On the way home we decided to stop for some ice cream, got it and drove into the national forest where we sat by the river and just talked for a few moments. Heavenly bliss.............
Back home now and all is well. So how was your day?
Allie's Dad
PS the affirmations continue to work; we have been using - everyday in every way all the right people in all the right places are coming into our lives to help us and we are happier, healthier and wealthier than we have ever been. Pretty cool. Affirmations do work! Also Allie now does not mind me doing the blog so all is well!!
Monday, September 3, 2007
mon. eve.
Just to clarify, Allie has discontinued an a strong anti-seizure medication (per the neurologist), but is taking a different one.
Just to clarify, Allie has discontinued an a strong anti-seizure medication (per the neurologist), but is taking a different one.
Monday Evening, Spetember 3rd
Once again, what a difference a day makes. One day off medicine and Allie woke up in a great mood and was ready to get back to life. We watched a little TV together this morning - America's Next Top Model. Since the beginning of this eposide or shall I say since Allie has awakened, I have probably watched 150 espisodes of America's Top Model - WOW, what a father will do for a daughter.
Tried to get back to real life as a family again so we all went out to luch (Sushi) and then off to a movie - Mr. Bean's Holiday - I thought is was hilarious and the others also enjoyed it. Then we go home and during dinenr got a call back from a local D.O. who has offered to work with Allie and he wanted to see her tonight, to which Allie was agreeable so she and I loaded up and drove over to his home where he did cranial and energy work on her for about an hour. She loved it and when she got off of the table at the end of the session she looked like a new person.
Tomorrow we have an appointment with the psycologist at Care Partners, the out patient therapy center. You need to be assessed before meeting with the therapists which will be on Friday and we also got the name of a great neurologist right here in asheville so we will call for an appointment tomorrow, also the name of a great physiatrist also in asheville so things are looking up as we will neot be stopping there but looking into the advice of everyone who has written to us. Thank you all so much for your leads and your personal stories, they really help us get though the day sometimes.
So tomorrow is a new day and we will begin all over after a wonderful night of healing.
Love and Recovery
Allie's Dad
Tried to get back to real life as a family again so we all went out to luch (Sushi) and then off to a movie - Mr. Bean's Holiday - I thought is was hilarious and the others also enjoyed it. Then we go home and during dinenr got a call back from a local D.O. who has offered to work with Allie and he wanted to see her tonight, to which Allie was agreeable so she and I loaded up and drove over to his home where he did cranial and energy work on her for about an hour. She loved it and when she got off of the table at the end of the session she looked like a new person.
Tomorrow we have an appointment with the psycologist at Care Partners, the out patient therapy center. You need to be assessed before meeting with the therapists which will be on Friday and we also got the name of a great neurologist right here in asheville so we will call for an appointment tomorrow, also the name of a great physiatrist also in asheville so things are looking up as we will neot be stopping there but looking into the advice of everyone who has written to us. Thank you all so much for your leads and your personal stories, they really help us get though the day sometimes.
So tomorrow is a new day and we will begin all over after a wonderful night of healing.
Love and Recovery
Allie's Dad
Sunday, September 2, 2007
Sunday Night, September 2
Night comes to a close and the tension is palpable. Not between me and nancy or Allie or God but with yourself. How do you go to sleep when all you want to do is continue going in her room to check on her but you can not do that. This is just another path on the road to Full recovery and as she heals, so do we. I don;t know the lessons here and may never but right now I don;t like them - don;t have to I know as I have said many times - I will never leave you and I know that to be true but dang will the day ever come when we don;t worry about this little girl - we know it will but there are times you wonder.
Tomorrow is a great day for a breakthrough.
Allie's Dad
Tomorrow is a great day for a breakthrough.
Allie's Dad
Sunday Evening, September 2
And the test goes on. All arreared well this morning then when Allie woke up we noticed that her face and lipes were swollen and she had broken out in a rash and all we could do was look at each other and go damn. When the heck are we going to catch a break. Nancy was besides herself and quickly looked up the side effects of dilantin and sure enough some of the werious side effects which required you call the doctor were swollen lips and a rash. Now what! We called the pediatric doctor who prescribed the med and he said to just discontinue it and give her some benedryl. Back down the rabbit hole or maybe the universe is just telling us that this child is not supposed to be on medicine. Any how we had to treat it and did.
Tomorrow will be better and we are all greateful to be home.
Allie's Dad
PS - Don't stop prayin
Tomorrow will be better and we are all greateful to be home.
Allie's Dad
PS - Don't stop prayin
Sunday Morning. September 2nd
Early morning, nancy and I sat outside haveing coffee and tea and spoke of how lucky we were and where to go from here.
We listened to the birds sing and were happy
Allie's Dad
PS To the guys at the Roger C. Peace Center - We love you guys, you are the funniest and Mark, you are the best, Allie loves you and so do I.
Say good night Gracie - Good night Gracie
We listened to the birds sing and were happy
Allie's Dad
PS To the guys at the Roger C. Peace Center - We love you guys, you are the funniest and Mark, you are the best, Allie loves you and so do I.
Say good night Gracie - Good night Gracie
Saturday, September 1, 2007
Saturday Evening, September 1
Well we are home and boy are we tired.
I finally decided after reviewing the facts on-line, with confidants, with other patients on the floow, with other people who have had spinal taps, with my own memories of having one and of course in conteplation with God that we were not going to do it on Allie. I had a sick feeling ever since they mentioned it and have not wanted it and no matter how hard I tried to conform to what they wanted, I could not go against myself and my belief in the wisdom of her body and my view of health care mainly because she was asymptomatic; not exhibiting any symptoms which would warrent a spinal tap. If she ever does we will take her to our local emergency room where she can have one done - don;t believe it will ever be necessary. Anyhow my decision did not go well with the pediatric neurologist who promptly said he thought we should seek a second opinion from some other group and basically said since we did not listen to him on this issue that we were dismissed - boo hoo. Wow I have never met a group with bigger or more fragile egos. It seems that if you question or do not immediatley comply that you are labeled as non compliant and dismissed. Actually I can understand and have no hard feeling I am just dazed and confused by the way these guys never sat down with us and explained their thought process, where they thought they were going, what their rational was and what they were going to do it what they had origionall thought did not pan out. Then they had the gall to tell me that I was not doing the right thing by my child when I refused to physically restrain her twice a day, causing her huge amounts of physcological stress which may be the cause of her problem just to give her shots in the stomach at $3,500 a month. Brutal especially because they could not answer my questions as to why they chose that medication and why they immediately chose a six month course of action when there was no visible evidence of stroke and before they got the lab results of her blood back from the Mayo clinic, a week or two maybe but six month? This I thought was an extremely lucid and rational line of questioning yet was taken as being a trouble maker. Call me protective but hey if you have never tried to give a 17 year old tbi patient who has been shot in the stomach 10 or so times already another one and you are not a doctor/nurse figure in a controlled enviromnet with other nurse/doctor figures standing by to help, let me know - to think this can happen is beyond comprehension and then to say to me that hey sometimes parents have to do things to their children for their own benefit is callous and insensative and the remarks of someone who has never done it. Remember, walk a mile in my moccasins.
Anyhow our departure was much like that of Felix Unger, Dah dun da duh da duuuuh, da da da da da daaaa daaaah on September first, Steve Cagen was asked to leave Greenville hospital and to never return, that request came from his pediatric neurologist. A little nostalgic humor for those of you old enough to remember it.
Well we are home and happy and while not worried are ever vigilant to Allie and her condition. We talked (or she did) on the ride home and had a good time. We will be checking her temp. everyday a few times to create a baseline we can moniter. We know a fever is always present with any type of infection, something she has not had (asymptomatic). She is upbeat and so happy to be back in her own bed. She has just taken a bath and we have requested that she not shower for a few weeks since that was when we noticed the episodes would come on.
All in all we are OK with everything and looking forward to getting back on the Full Recovery band wagon. I can not remember who gave me the book The Monk who Sold his Ferrari but thank you, I am really enjoying it and Allie thinks the title is funny.
So with grateful hearts we head off to bed knowing that everything is once again OK and our family is all at home together. I would like to thank my sister Roni for coming up - you came for a visit but got an adventure. I am glad you are home safely.
To everyone reading - God bless and good night.
Allie's Dad
I finally decided after reviewing the facts on-line, with confidants, with other patients on the floow, with other people who have had spinal taps, with my own memories of having one and of course in conteplation with God that we were not going to do it on Allie. I had a sick feeling ever since they mentioned it and have not wanted it and no matter how hard I tried to conform to what they wanted, I could not go against myself and my belief in the wisdom of her body and my view of health care mainly because she was asymptomatic; not exhibiting any symptoms which would warrent a spinal tap. If she ever does we will take her to our local emergency room where she can have one done - don;t believe it will ever be necessary. Anyhow my decision did not go well with the pediatric neurologist who promptly said he thought we should seek a second opinion from some other group and basically said since we did not listen to him on this issue that we were dismissed - boo hoo. Wow I have never met a group with bigger or more fragile egos. It seems that if you question or do not immediatley comply that you are labeled as non compliant and dismissed. Actually I can understand and have no hard feeling I am just dazed and confused by the way these guys never sat down with us and explained their thought process, where they thought they were going, what their rational was and what they were going to do it what they had origionall thought did not pan out. Then they had the gall to tell me that I was not doing the right thing by my child when I refused to physically restrain her twice a day, causing her huge amounts of physcological stress which may be the cause of her problem just to give her shots in the stomach at $3,500 a month. Brutal especially because they could not answer my questions as to why they chose that medication and why they immediately chose a six month course of action when there was no visible evidence of stroke and before they got the lab results of her blood back from the Mayo clinic, a week or two maybe but six month? This I thought was an extremely lucid and rational line of questioning yet was taken as being a trouble maker. Call me protective but hey if you have never tried to give a 17 year old tbi patient who has been shot in the stomach 10 or so times already another one and you are not a doctor/nurse figure in a controlled enviromnet with other nurse/doctor figures standing by to help, let me know - to think this can happen is beyond comprehension and then to say to me that hey sometimes parents have to do things to their children for their own benefit is callous and insensative and the remarks of someone who has never done it. Remember, walk a mile in my moccasins.
Anyhow our departure was much like that of Felix Unger, Dah dun da duh da duuuuh, da da da da da daaaa daaaah on September first, Steve Cagen was asked to leave Greenville hospital and to never return, that request came from his pediatric neurologist. A little nostalgic humor for those of you old enough to remember it.
Well we are home and happy and while not worried are ever vigilant to Allie and her condition. We talked (or she did) on the ride home and had a good time. We will be checking her temp. everyday a few times to create a baseline we can moniter. We know a fever is always present with any type of infection, something she has not had (asymptomatic). She is upbeat and so happy to be back in her own bed. She has just taken a bath and we have requested that she not shower for a few weeks since that was when we noticed the episodes would come on.
All in all we are OK with everything and looking forward to getting back on the Full Recovery band wagon. I can not remember who gave me the book The Monk who Sold his Ferrari but thank you, I am really enjoying it and Allie thinks the title is funny.
So with grateful hearts we head off to bed knowing that everything is once again OK and our family is all at home together. I would like to thank my sister Roni for coming up - you came for a visit but got an adventure. I am glad you are home safely.
To everyone reading - God bless and good night.
Allie's Dad
Saturday Morning, September 1
I can not believe it is September, but I also said that about June, July and August.
Morning time and Allie is still sleeping. She has been so amazing during this process that words can not express the amount of love and admiration both Nancy and I have for her. Never once has she wimpered or complained. She has wanted to go home, as we all do but she has understood why she is here and here level of thought and determination is such that she wants to do whatever it takes to get well. God Bless Her.
I almost stared to write that I was stoping the blog this morning because I was having a hard time being positive but I read many of the e-mails this morning, especially Jen's and it helped me realize that being frustrated is a part of the process and something that goes with the good and that there are many people out there supporting us and cheering us on who want to know how we are and how we are doing no matter the level of frustration because so many of them have their own stories and identify with where we are. You see this is not my world! I do not belong her, I live in a world of wellness - not sickness and my believe is in a higher power, an innate intelligence which controls and coordinates all function in the body. I believe that Allie is fine and in grace and will continue to heal unimpeded by outside influences and that she will go on to reach and live at her highest God given potential.
I am a very protective father and I offer no apologies for that. I have certain belief patterns which I also offer no apologies. I have to go because they are heading to Allie's room but I will be back with great news of the day.
carpe Diem
Allie's Dad
Morning time and Allie is still sleeping. She has been so amazing during this process that words can not express the amount of love and admiration both Nancy and I have for her. Never once has she wimpered or complained. She has wanted to go home, as we all do but she has understood why she is here and here level of thought and determination is such that she wants to do whatever it takes to get well. God Bless Her.
I almost stared to write that I was stoping the blog this morning because I was having a hard time being positive but I read many of the e-mails this morning, especially Jen's and it helped me realize that being frustrated is a part of the process and something that goes with the good and that there are many people out there supporting us and cheering us on who want to know how we are and how we are doing no matter the level of frustration because so many of them have their own stories and identify with where we are. You see this is not my world! I do not belong her, I live in a world of wellness - not sickness and my believe is in a higher power, an innate intelligence which controls and coordinates all function in the body. I believe that Allie is fine and in grace and will continue to heal unimpeded by outside influences and that she will go on to reach and live at her highest God given potential.
I am a very protective father and I offer no apologies for that. I have certain belief patterns which I also offer no apologies. I have to go because they are heading to Allie's room but I will be back with great news of the day.
carpe Diem
Allie's Dad
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