To finish up from the blog before.
Anyhow the shots were not going to happen and the nurse was in there to see Allie's reaction. So we told the charge doctor that we were not going this route and that he woudl ahev to find another way. Well they are all pissed off at me and think I am the most non-compliant trouble maker ever to grace the hallowed halls of Greenville Memorial hospital. Anyway Dr. Big comes in later and tells us that is is the shots in the stomach twice a day even though there is no sign of stroke or cumadin but that the levels would not get high enough and on and on. Well while he is talking Nancy goes into the hallway to make a call and then comes back in adn when I ask her her opinion she says she would like to speak to me in the hallway for a moment, well this sends Big into a tizzy and like a prissy little school girl he stand up and says Don't do this to me and I will not stand for this and storms off with his minions in tow saying when you've made a decision, come find me - real pro eh? We decided we will go the sapirin route. Come on, how many of you could hold your 17 year old daughters down and have them let you inject them in the stomach with a medicine that burn as it goes in twice a day much less having a daughter with a brain injury. Let's get real, another brilliant moment like the 24 hour eeg.
Well they all went away and Allie and I had a grand old time playing pool and foosball and cards until she had yet another MRI to see if thing have gotten worse and one of the neurologists just reported in that it had and that he saw no option but to do this Lumbar Puncture (spinal tap), well we talk for a while and basically he said it is to determine if she has a viral infection, bacterial infection or nothing at all. and I ask what he would do either way full well know if it ws viral - nothing, bacterial, antibiotic and nothing, well? nothing and he agreed. So is it would it, now I'm between a rock and a hard place, I am sure it will come back negative and even asked him how he could think infection especially since she has not had any fever the entire time and he just shrugged. We have go through everything else so I asked Allie what she thought and she calmly said, whatever is best for me so they have beat me into submission, I will hate myself for doing it or I may hate myself for not doing it but basically I hate myself for being in this situation and not trusting who I am or what I believe in. Forgive me.
Anyhow my anxiety level is off the charts but please let me say, you are only reading my thoughts. Many people have questioned my faith or how I was doing recently and I really am doing fine, I am just stuck in a situation I do not agree with and I am doing things I don;t believe in andI am having a hard time with it - I will be OK and I am OK, so let's just all get through this and get our little girl home.
Peace and Love'
Allie's Dad
Friday, August 31, 2007
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2 comments:
Hi Guys, What a place to be in. No one is walking in your shoes and no one can begin to know what you feel. My heart goes out to you. Damned if you do and damned if you don't.
My mother had the shots in her stomach daily, she needed them but they are no picnic. Allie is being very patient with the white coats. We are allowed as "clients and patients" who are paying the bills to know the why's and wherefors. Are we not?
I have seen Drs playing Mr Superior too many times. They told my husband 30 years ago that I would be in a wheelchair at 50. We did not accept that verdict and it never happened.
No one, Steve, has the right to question your faith. That is a very private matter. Lets just say that when Mother Theresa confessed that she lost her faith many times (book just out). God , no doubt, has a lot of patience with us. No matter how we feel, He is there.
Follow your inner voice.
My prayers are with you, Jeannot
Dear Cagens,
Another frustrating day for all - I'm so sorry that you continue to go through so much. Hope that things get better real soon.
Always in our thoughts and prayers.
Much Love,
Clare and Kim
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