Home at last. Who ever said theres no place like how knew what they were talkng about, same as the guy that said carpe diem, life's to short, be prepared and question authority.
As I type everyone else slppes and my anxiety build as I await to see how Allie is this morning. Those who have ever been in a clsoe call in an auto accident can relate to how I feel right now. At the time your adrenaline is up and you are in survivasl mode and once it is over and you can relax for a moment your can fall apart a bit.
The final nuerologist came in and really tried to scare us that we needed more tests and such as if we didn;t stay in the hopsital a few more days and do more tests - who knows. Fortunately I ran into the neurosurgeons who are great and I trult trust and they put both Nancy and I at ease. These guys in the hospital can truly have your forgetting who is really in charge - glad we were strong. I requested all of her records and wouldn't leave until I had every paper, picture, note and test - let's get some other opinions. For now, Allie needs to be home and once she got out of there she seemed to to immediately go in the upswing. I olny pray she slept well and she awakens better. It just keeps running through my head - I will never leave you, I will not forsake you.
Everyone (all of the auxillary people) in the hopsital are alway so kind to Allie and truly love her. Ms. Ruby in the gift shop (as Allie would say, my favorite place) God bless her 83 years old and still there working the shop and quite well I might add, Ms. Patty, Jane and Darlene and of course the good folks in subway who know immediately what she wants as soon as she walks in.
Another road in the adventure and I am sure this was for a reason - never question why, we can only do our best and work for the future, We need to enjoy life more, play with them more, hug and kiss them more and certainly tell them we love them more adn with any luck we have done enough and we have instilled an unshakeable faith in them and an intense will to succeed and will will all live to see another sunrise and grow old together. When people write, expecially those corny quotes you may blow them off because you are only reading the words but not feeling them the way the writer meant them to be felt. Live for the day, I would trade all my my gold for another day of health,,, not words but feelings on paper and unfortuantely you may have to have suffered a tragedy to feel the feelings. I hope you don;t/
Morning, before anyone wakes up has always been my favorite time of the day.
Gid Bless
Allie's Dad
PS - Thanks for writing back. It really helps
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7 comments:
Dr. Cagen,
I just wanted to write and tell you that I am still following Allie's story. What a strong family you are. You are definitely an inspiration to all who know you personally or thru your blog.
I am so glad that there are others out there who refuse to let the medical black hole intimidate and take them over. Stay strong and stick to your guns. You and Nancy know Allie better than anyone.
I will continue to pray for you all and of course Full Recovery. Stay strong and may God bless you all.
Jennifer Evans
Dear Steve, Nancy, Allie and Matt,
So glad to hear Allie is home where she belongs. Hopefully, you will get to the bottom of Allie's latest set back. You have such strong faith and acceptance and you can depend on that. We wish you a special day.
Always in our thoughts and prayers.
Much Love,
Clare and Kim
Cagen Family,
So glad to hear you are finally back home. Praying that Allie continue to recover and has no more set backs.
Shannon Howe (OT)
The two of you will no doubt be more help for Allie at this point than a dozen white coats with too many testing tools. She will and is getting better no matter what we see.
God is at work !
So glad you are back home - still praying for continued recovery and calm in the Cagen house again...not just uneventful calm, but peace in every circumstance. Much love and many prayers from OKC!
God Bless your family. I pray for Allie every day. I am sorry to hear about the complication (or "bump in the road") as all the medical people have been calling it. My daughter is still in rehab for almost 4 weeks now but we would love to get her home. I know it would be good for her- better than the hospital setting. But we can't yet. Thank you again for your postings and your faith. Thank you for believing in FULL RECOVERY.
Tracy Juliano,
Rachel's mom
Massachusetts
God Bless Allie and your family. I am sorry to hear about Allie's complication and your experience with the "system". We are still in rehab so we are dealing with insurance companies and additional days, etc. Sometimes we feel like taking Rachel home because I know the environment at home would be good and she'd improve more but she's still not medically ready. But we've learned that we HAVE to stay so my husband and I take turns. We have to watch her every minute because the floor she's on is so busy.
Thank you for your postings, your faith and your belief in FULL RECOVERY.
Tracy Juliano, Massachusetts
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