9:10pm and our little darling was so tired she couldn't keep her eyes open for another second. Unfortunately she will have to get a shot shorty which will be a rude awakening but hopefully for only a moment - she has been exhausted ALL day.
So where do we begin today? Who knows but there is good news. It's all kind of wierd to be doing so good fro so long and then a curve ball comes at ya. Well they put Allie on the antiseizure med. the other day and we are prretty sure that she has still been suffering seizures and that should not be because of the medication so what else could it be besides a TIA or mini-stroke with reversable paralysis. It will be OK if we figure it out because it is treatable but if not treated it is a precursor to something bigger - irreversible.
When we got here today they put her back in pediatrics which was OK but we had an uneasy feeling about the pediatric neurologist - probably very good and he did recommend further testing and got her directly admitted today but you know, when something dosen't sit right ot just dosen't so we asked if there were any other pediatric neurologists but to our suprise in the whole system there were no so we asked for an adult neurologist come and see Allie - well they called the one on duty but the guy was the biggest ass8&%^& on the planet and would not come over to the pediatrics unit to see a patient and yelled at the resident that made the call and told them to put a real doctor on. What a jerk!!! So now Allie is without a neurologist for the moment - if one will not come tomorrow, we will ahve to move her to the adult unit - what a bunch of semantics. Those guys won't come here because they feel like they are stepping on the pediatrics guys terratory - screw the patient. What we have to put up with. Anyhow the rest of the doctors and nurses on the floor have been teriffic
Poor Allie once again became the human pin cushion - lots of blood samples (some going to the MAYO clinic to check and see if her blood really coagulates to quickly which may be a problem - to thick) and her veins are so tiny it is extremely difficult to get blood from her. Ouch!
From there it was off for another CAT scan to check for any hemmoraging in the brain of leaking and thank goodness there was none - then back to MRI to a prestroke evaluation to check for any stenosing or narrowing of her arteries which may be the problem. If it is she can just be treated with blood thinners for awhile.
What has happened to my baby - the good news is on the way to the hospital she told me she was a fighter and not a quitter and she wanted to get healthy and go to school and go on Broadway so thank you God for all of the healing you are giving her and thank you all for caing.
Allie's dad
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6 comments:
Sending love and prayers your way! Looking forward to hearing that you guys found the best neurologist in the WORLD and have more great news for us! We are pulling for all of you - and we know that you will all make it. You have God on your side and TONS of intercessory prayer! :o)
Steve, thank you so much for letting us know about Allie's progress tonight. We have all been so worried since your afternoon comment, but are happy to see how Allie is doing, especially when she told you that she is a fighter. And she is!! I'm so sorry you've had to deal with the medical system at its worst, but hopefully tommorrow you can get her in the adult section. We are sending prayers and love to you all tonight and every day.
Tibby and Homer
Please know that I am thinking of you and pulling for your family everyday. I understand somewhat what you are going through. My husband had his first stroke when he was 41 and two years later it was discovered that he had a clotting disorder. Massive amounts of coumadin controls the issue somewhat, but he has had a total of five strokes and multiple TIA's in the 17 years since. I understand your frustration with the physicians. I have had to stand my ground many times and have doctors refuse to deal with me. That's okay because it is for the well being of my family and we must be an advocate for them. Know that there are those of us who are pulling for Allie and your family. She will make it through. I have faith in that.
Dear Allie,
God is watching over you. I am glad that you told your dad that you are a fighter and not a quitter. That gives your parents the reassurance that you are all in this together and you will all fight this with God on your side.
I am sure it must be hard for you to know that people are talking about you and you might feel that your dad is betraying your privacy, but you have to try to understand that everyone is growing through your experiences and what your dad shares with the faithful "Bloggers" is helping them (all of us) to grow in faith and understanding and most of all in compassion for each other.
I can't tell you how many people come up to me, because of coverage in The Mountain Voice, to ask how you are doing and what is happening. People care about you and we are all pulling and praying for you. Please know that everything that your parents are doing, and have done for you since May 14th, is done out of unconditional love. You are surrounded by the love of hundreds of thousands of people... if not millions. People around the world are praying for you.
Hang in there and be strong. Let God work many good things through you and your wonderful family. We all want to see your smiling face back in the office. I want to cover your first play on Broadway for your home town followers and family. God is blessing you daily.
Lynn, Ralph and Adam Peters
The heart of The Mountain Voice
I am sending a lot of love and continue to pray. Nancy and Steve you are continuously in my thoughts. Allie is a fighter, this is just a bump on the way to a smooth road.
I was so sorry to read the blog this a.m. and see that our sweet Allie is back in the hospital again. We will be keeping all of you in our thoughts and prayers. If Nance doesn't get a chance to read this Steve ... please tell her we love her and all will be well soon! It can just be a slow process getting to FullRecovery but you guys have such a strong bond with one another that you will make it! Be Patient. My dad used to tell us ... "If you feel you aren't strong enough to do it ... you just need to reach down and dig deeper!" Keep reaching guys!
Love Ya!!
Pam
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