Holy cow - it's August! Sorry about not blogging, just too tired and wanted to rest for a while - still really tired today - I wonder why?
You know, yesterday was just Ok and I don't say that to mean that things are not going well, only that some days are just OK. Allie is a miracle and in that sense things are beyond great and we feel like the luckiest people alive but still, some days are just Ahhh.
The little girl was hornery and at times gets very vocal - I don't care but she can be so mean to Nancy the person who is there with her the most and we know why but still the same with her coming home Friday it can be scary as all get out. Are we equipped to handle this - heck yes we are and I can say that boldly because I am not the one there everyday but I know that Gad has given us the stregnth, aptitude and attitude to take care of this in a loving, caring manner which will bring Allie to her highest level of recovery - Full Recovery.
All of us went to breakfast yesterday morning and had a great time but something set her off and phew, got kind of rough. At times you just want to shake her or speak loudly to her and say come on Allie wake up but you don't - you let it roll off your back and speak to her in your most loving manner and distract her onto another subject.
After we got back Allie had some therapies so MAtt, Nancy and I went to the mall to look for ways to alarm the house so we know where Allie is and if she has left the house. She gets lost very easily. No luck with the alarm but we had fun and Mat got some sneakers.
Lats night we threw pizza party for the people on her floor and it was fun. A lot of people are leaving over the next few days and it was fun to get everyone together on last time. Goodbye Issac, Allie will miss you and Jonathon and Adam. The night did not end well but that's the OK part, fortunately we have her for another day to try it again. I am sure today will be great.
Talk to you all later.
Allie's Dad
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4 comments:
Hello! I've been thinking about ways to keep Allie safe and the first thing that comes to mind is the alarm system that attaches to the doors that are frequently placed when someone has a pool. They ring to let the adult know when someone goes out of the door. Also, I would recommend a Medi Alert necklace or braclet with her information on it so if she did get away from you at home or on an outing she could be found and returned. I am going to check around and see if there is something else that is easily installed for a reasonable price. Have you decided on Allie's therapy? If you have a facility in your town with an outpatient program for the day this would allow you freedom to work and her a different routine. In our Rehab, the patient punched a time clock, brought a lunch, and stayed for 6-8 hours. It was their job. This taught them responsibility and prepared them for working down the road. It also incorporated good social skills, speech, O.T.,and job skills. Take care, Mary
This note is mainly for Nancy, I think she is probably one of the strongest people I have ever met. I take a bow to you, Nancy. I worked in this field and I know what it takes. After work was done I could walk away. Nancy you have been there 24/7 and I do not know how you are doing it.
As the slogan goes "even the mighty lion has to chase the flies away".
I think you did not even have time to do that. I hope you have help when at home. I know you guys also have a business to run so this is a full load but take care of yourself.
Dear Nancy, Steve, Allie and Matt,
Thanks for the surprise call tonight Nancy - so wonderful to hear your voice. Really, really great. Your awareness of Allie's needs will get her/you through this and you are so attuned to them. You seem to have found a balance. Hope Allie's transition home goes smoothly. All our best to you for the next part of your incredible journey.
Always in our thoughts and prayers,
Much Love,
Clare and Kim
There are small alarms that you can stick to the top of a door or window with two pieces, one for each part. Whenever they separate, either an alarm or a chime (like a business door) goes off, whichever you choose (there is also an off switch). I use this on my screen door for summer nights and you can purchase in larger quantities for a reasonable price at your local home improvement store. Hope that helps! God Bless!
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